On day two of perapentin...

[louiseamos]

Yesterday had first one..and only one..god I felt funny...wozzy and don't drink so not a nice feeling to me!!!!!!now did find it helped with my pain... This morn woke up happy???had another lunch...bit wozzy..only thing I think it numbs something..I went nuts cleaned my house top to bottom..my grand house too!!!!feel so sore now????!same tea time..just cooked a big meal!!normally just a little bit of tea ...stood 2 hours..I now in lots of pain now,,,,???why does it make me feel like this????????

[Bananas5]

Oh dear. You have broken the golden CP rule! Pace yourself and stop before you finish.

What strength have you started on?

Pat x

[louiseamos in reply to Bananas5]

Paton...l knew..l knew...??!!?75 mg.twice a day only had 1 though has having bad heads!!??x

[Calceolaria]

Is it gabapentin you are taking or pregabalin? There are side effects to these meds and feeling woozy is one. Its great that you are getting some pain relief at last but you must do as Pat advises - pace your activities. Its so tempting to crack on and do things when we have a good day but we suffer for it later, so be sensible. Try deciding what you can reasonably do in any day and break it down into bite-size tasks. Dont do more than you have agreed with yourself and take breaks in between.

l

[louiseamos in reply to Calceolaria]

Hi calceolaria.... Its the pregabalin one 75 mg twice a day..I've a week before I've to go back..still feel bit werroid.. But its helping something.. The back head ace isn't nice??.and that feeling when eat ice cream to fast in front of eyes????that's the simptons... Oh and going nuts cleaning....and if have kids..make tea..its same as before... I knew..I am very very sore now!!!!I've got slow working morpie that need to try!!!has no its better for you then having more during day...but scared to try loads different stuff!!!!its been hard even trying this med..has in past they gave me so many meds..some with bad side affects..........my arms legs killing ahhhhhhhhhh.. What's this doing good or worse???????xxx

[Mistee]

Uh-Oh!! This is why you need to be going to a pain clinic!!!!!

Never ever ever do a whole big job in 1 go!! We all do it so don't beat tour self up about it but the pain clinic will help you learn to pace yourself so you don't set yourself up for a fall, until you're able to see them, don't do anymore than you would normally do!.

Think of it like this, say you're an athlete who is world famous for your speed in the 100m sprint. One day you wake up and think to your self how bored you are of sprinting. Instead, you get up out of bed, pull your trainers on and go for a 5 mile run. You're an athlete so you can easily run 5 miles right? Wrong! Your body is conditioned to sprinting and will not be able to cope with a sudden change to distance running. Instead, you have to build up your distance a little at a time and learn new stretches and warm ups/cool downs to prevent injury. Make sense? Well what you've done is woke up and decided to run 5 miles with out building up to it and it's too much for your body to take, you're muscles and joints are not used to doing so much and need time to recover, then they will need time to get used to being used again before you increase your level of activities.

The best thing I can suggest is to get a pen and paper and write down what you can normally manage - what you could do before starting these meds e.g. maybe 10-15 mins of house work before the pain starts. Maybe a 10 minute walk etc. Stick to that for a week and write down how you feel after the activity each day. Then when you feel fine at that level for a week or so, gently increase. Maybe 12-17 mins of housework. Continue to write how you feel.

A week or so of feeling fine, increase again, maybe 15-20 mins of house work etc. I know it's frustrating, you feel better and yo want to make the most of it, but like the athlete, you will suffer if you don't properly prepare and build yourself up to it. Hopefully you'll get to see a pain specialist sooner rather than later so they can fully review and advise you more accurately. Don't be afraid to tell them that you're a member of this group, if they're the kind off medical professionals that are more interested in the number of cases closed than actually helping you, hopefully it'll make them think twice about fobbing you off like to u have been in the past but if you still feel like they're not interested in helping you, get in touch with PALS the patient liaison service.

The way a lot of these neuro meds, like amitriptyline, gabapentin etc is they block messages between the neuro receptors and the brain. Gabapentin, as I understand it, is an anti convulsant medication used by epileptics to prevent seizures. They work by blocking the neural path that sends messages to and from the brain. This also makes gabapentin a useful pain reliever as it blocks the pain messages from travelling along the neural path.

Take it easy today honey, let your body catch up with it self and take care xxx

[louiseamos]

Hi mistee... Boy I wish I'd read this sooner..like this morning..day 3.. Its the pregapenin.. One..!!I took this morning..went on a mad hour walk with dog..after cleaning again!!no I've a cleaning problem!!any way came back got carpet cleaner out..my hubby was going to clean all 4 bed rooms with carpet washer..just freshen up !!!guess what I had the the feeling oh I can I must..guess what..I did..scrubed the carpets..nice clean!!made tea..guess what..come 5 pm!!in so much dam leg back pain..took my 3 morpie pills..didn't do a thing...I've a ice cream head ace if no what I mean!!pain in eyes..and back of head!!!???? I am now sitting 1030// at night hot water bottle on my back!!very sore!!I am going to take your good advice there write stuff down..up till 3 days ago..I just sat on sofa most of day..so don't knew what's going on!!its doing something good!!but bad if giving me the need to do what I shouldn't..I've a bad head..which isn't good!!I've been pain clinic couple times!!last came out crying!!he told me on morpie its just my same pain???I had a scan a month later showing a disc excureding.. On my s1 nurve causing severer sciatica..nureosuren guy wanted to operate.. I wanted to wait..also said I've bad arthirts in lower spine andmust take easy???!!!!...I am confused from last MRI which physio sent me..had spondy names in it..and now shows 2 disc protrusion s..so why's it getting so bad???no I've DDD..?? Any was back to meds .hope they work..will save a operation..depression etc..but has for pain clinic. I hope not like last guy I saw twice before..was awful.....meds think OK so far..apart from head ache... I am deff taking a leaf out of your book writing everything down..forcing my self to stop.....thank you xx

[louiseamos]

PS..mistee..caleorlaria..Paton... If I get no help this time..I've got to go get help..its not been good..I've even been having bad.sore chest were I had worse of phymioa 2 year ago... And its sore under ribbs again...see..ribb thing they could say its fribo thing??? ..oh had letter from rumo I went to..she said I've very low white blood plates??? Ten years now..very deganirtive disc s.on multiple levels..not to let no spine folk touch me.has have bad scarel damage..and rest you prop read..spondyt ?... And that thing when spine sucks in??another spondy thing in there....been having lot of chest pain lately..don't knew if same has what had before has went away..I get sick been fobbed off..it hurts to breath in?????I can't be I'll have kids..no I am not going nuts tomorrow......... Thanks for all advice grateful....