i'm getting worse by the hour and i'm really scared.
My doctor has just stopped my MST script and ... - Pain Concern
My doctor has just stopped my MST script and have gone from 70mg x 2 daily to nothing. I am now in awful withdrawal can he do this
Am with Bob, they should off weaned you off them slowly....
You said you were on 70mg, reduce slightly to maybe 50mg for a few days, then continue until your clean.... but your best to get help from gp...
Take care
JOE
Thats just it though my prescription was due and when i rang to ask if it was ready as usual but was told that someone higher up has made him do it and it's out of his hands. My daughter rang the out of hours doctor and he has just faxed a prescription for dihydrocodene 60 mg and is ringing my doc in the morning to ask him to reassess me. I feel a lot calmer but as he has only given 2 doses i'm just worried it's going to start all over again tomorrow
Excuse my ignorance but what is MST?
I would have thought that for your GP to stop any medication without first discussing with you is neglect of care to his patients.
Having said that is it not advisable to have several days supply in your cupboard when you place a repeat script at the surgery or chemist? Our chemist does not hold supplies of Morphine and they have to be ordered when required so we always order before running out.
I don't mean to be wise with hindsight.
Pat x
Hi Jane, How awful for you. And i agree with Pat - that's neglect on your gp's part. Can't believe that he could be so cavalier with your health. After all, drug addicts get plenty of help to come of drugs and cold turkey shouldn't be an option. I do hope that by now you have been in contact with him and have a proper withdrawal programme from MST. xx
That is awful and irresponsible. Speak to another GP in the surgery or speak to your pharmacist, they should be able to help. Or if you are under a consultant speak to them. You shouldn't stop them but reduce down. Good luck and let us know how you get on.
Well the Dihydrocodeine worked for all of 3 hours but managed to last another 8 hours till the other dose. As of now I am still waiting to hear from my doctor but I think he is going to stick to his guns. I have not slept at all for 2 days now, I cant eat and I feel like my body has become a nest for ants. I never knew you could feel hot and cold at the same time and my legs just cant keep still. I'm scared if I try to contact another doctor they will just take my other doctors views. I have been diagnosed from the hospital I have DDD on my lower discs and cant understand why all of a sudden I am not allowed pain relief anymore. Do they think my back has suddenly healed itself?. I just don't know what to do.
Hi Jane
I am so sorry to hear what you are going through. I can fully relate to how you are feeling, as I ran out of my oxyxodone cpl of weekends ago and I suffered the very same symptoms you're experiencing, the hot and cold sweats and like yourself it was hard to keep still in any way or form. I felt nauseous and anxious. I was unable to get any more meds until the
Monday but I was lucky and knew I had a way out come that day. I really think you need to speak to someone else if your doc won't give you any more. He should at least just lower the dosage and do it gradually, not like this. I am awaiting my doc right now, so to speak, as I am still suffering from the sweats and he says we need to take another look into my meds. If you get no joy from your doctor I really do suggest you phone up the new helpline, (can't think of it offhand but it'll be on the NHS website) and see if they can advise. You can't be left to deal with this without something to help to wean you off and your doctor should know that.
I do hope you get things sorted, and please let us know how you get on?
All the best
Tracy x
Hi Tracy just thought i'd let you know and everyone else who helped keep me sane and alive more than anything that yesterday afternoon after I last commented on here I got so bad that my daughter rang the A and E and they told her to bring me in and when I did they immediately took me into Majors and after talking to his big boss they promptly put me back on my Morphine.They said that my Doctor should never have done what he did. But by some miracle (and here I believe the doctor is covering his backside) they rang my home and spoke to my youngest daughter and told her that I had had a script waiting at the chemists since the 19th. I know for a fact it wasn't and am gonna go deeper into this now. I had the complaint form picked up for me and I am gunning for him now. What he did was so cruel and ended up with me being in hospital overnight for observation and so humiliated that I had to go out in public in the state I was in.
Would just like to thank each and every person who messaged me yesterday. You all really saved my life. I'll let you know how the complaint goes xxx
Hi Jane
Thanks for your message and I am so glad you sought further help. Your doctor should never have put you in that position and I am just so glad you went to A&E. I nearly suggested that after I put the other Nhs suggestion down but I thought that at least the other one could advise depending upon how bad you were. You're daughter did the right thing obviously! I can understand how humiliating for you it must have been and its a terrible thing to go through. I forgot to mention in my first post, that I was lucky enough to have some tramadol, which was the medication I was on before the oxycodone, so I took some of them to take the edge off til the Monday, but I still suffered badly, so I knew exactly what you were going through.
Like you say, how convenient for there to suddenly be a prescription, apparently awaiting your collection! You are right to take this further, it was very badly dealt with and your health was at great risk. Yes please do keep us informed on how your complaint goes, as you should never have been left like that.
My doc has now decided to change my meds again as I am still not good with the side effects of the oxycodone, so I am getting something else thats combined with an anti depressant as well as pain control, as I am getting so down and in a lot of pain and not sleeping, so it's hopefully going to help me in all aspects! Fingers crossed as this will be the third attempt!
I really am pleased to hear that you have managed to get everything sorted, but I am sorry that you had to go through that awful ordeal. I am glad you posted your original post too and that some of the advice was worthwhile. To be honest with you, I wouldn't be without this site now, since there are so many wonderful people on here.
Take care and please do keep us informed, and if ever you want to talk, please feel free to message me or just post on here!
All the best
Tracy
Hi Jane, If I were in your shoes I would not wait for the doctor to get in touch with me, I would somehow get to the surgery and let him see the state I was in you could also get an explanation of why he has stopped your medication.
He also has to replace the medication he has stopped with another pain relief ,depending on his attitude to your problem and if you are still not happy ,after all you need to have trust in your doctor I would seriously consider changing my doctor. Good luck to you Jane I hope you get sorted. Tricia.
I am on 20mg nocte of MST and trying to come off with the use of Pain Clinic and amitriptyline and pregabalin. My doc said re MST when I start to come off, take 2 one night, 1 the next for several days then 1 a night for several days then 1 every other night for several days then you can come off. The codiene during the day can then be reduced as necessary. Hope this helps but agree that cold turkey shouldn't have been prescribed!!! Is your surgery usually good with you? What about the doc? I know morphone shouldn't be prescribed unless absolutely necessary (we have to sign for it twice as it is a controlled drug!) but when needs and physiology requires it then MST or similar (e.g. dehyracodiene - slightly stronger then regular codiene) might be a substitute!
Well there is still no response from my doctor and I am in so much pain right now I feel like screaming. My friend has offered me a dose of zoromorph of the same mg of MST I was on but will this put back my withdrawal. Or could it just take that edge off enough for me to give me the will to carry this on if I have to?
I wouldn't take anything else that has not been prescribed for you. Meds react in peculiar ways.
Who from higher up can change your meds without even consulting you? This is not regular practice. If your GP is not co-operating then get along to A&E. Explain the situation, they may be able to find put more info for you and give you some pain killers.
This is a doctor harming a patient which is against General Medical Council Guidelines. You could try calling them with a complaint and to see what they suggest. I am on a higher dose than you and being helped to lower it because of side effects only as other meds are introduced and my pain allows. It is a fact that some pain patients need high doses of morphine and it is good practice to give it to them. You do not say what side effects you are getting or the reasoning behind this cut. The General Medical Council have a public helpline and are very kind. The tel. No is: 0161 923 6402. They may be able to tell you where to go. Good luck.
I'd report the idiot to the GMC as he knows its dangerous to stop this form of med's without weaning you off of it, After all he has a care of duty towards you and he's obviously violated that rule big time, And if you can't get any pain med's from your surgery I'd go straight to A & E, I'd also change my GP ASAP once you get your med's sorted.
Hello BOB here
Regards MST (morphene, suspension, tablets)
You will need to reduce them over a period of time you will be feeling really ruff if you withdraw straight away.
The medication comes in a good selection of sizes and that should be used.
Depending on your dose and how long you have been on them about a month or two if in a hurry but personally recommend longer on half cuts. of tablets.
All the best
BOB
Hi jane ,l was on mst morphine for two years and gp was told to stop mine too,however
A good alternative is morphine patches ,just a thought
Your gp has a duty of care and just stopping ur mst like that with ought slow reduction
Is just out of order ,they know the withdrawal effects would be awful ...
Stopping any meds without reducing is negligence ,again three very important words to use are DUTY OF CARE..
Would like to thank everyone who helped me yesterday and gave me the support to stay sane. I'll update you all soon on what happens about the grieviance that is going to be brought against my Doctor. My family are raging about the way this was handled and I just can;t believe that my Doc is desperatley trying to cover it up now and make me look the liar. Don't think so. Talk soon, God bless you all xxx
Hi Jane
I also wear a MST patch and take it orally. You need to go back to your GP and request that you are heard again. Your MST should be reduced gradually.
Hello Jane
BOB here
Did you manage to sort something sorted regarding MST ???. If not are you managing
BOB
Well as you probably read on here I ended up in the hospital that day whereupon attending they were immediatley told by the big bosses to put me straight back on my Morphine I was unsure of taking it just in case I wouldn't be allowed any more when I got out and would be back to square 1 but suddenly as soon as my doctor knew I was at A&E he issued a prescription and post dated back to the 19th saying it had been waiting for me the whole time. I know this wasn't the case so dont know if any complaints will even affect him but am still gonna try as he is desperately trying to cover his tracks now.
I feel back to normal now after they kept me in overnight for observation in case of fitting but will let you all know how I fare with this. But thank you for giving me advice when I was, not to sound too melodramatic feeling suicidal. xxx
This is disgraceful, but not surprising! I have had all sorts of nonsense from Dr's over the past! Any Dr should know you can't suddenly stop taking med's, but have to be weaned off them gradually. If people have any prob's with their Dr, they should put it in writing to the Practice Manager. After saying this, though, as you said, everybody in the practice will cover up for their Dr's! (I have found this out also, to my cost)! I have kept a diary every day (over 28 years)! & I find this good evidence also! (You could've written in it that you'd been to your Dr and he told you to stop the med's (etc)!
Hi Jane,
I'm wondering how long you have been on these particular tablets. Morphine based tablets are habit forming and maybe the doctor is scared that you may become either hooked on them or even worse becoming toxic. there are other tablets that work on severe pain other than morphine based tablets. I know because I am alergic to Morphine but have had my share of pain.
Best of luck
Lacy