Crps

[kmarsham123]

I have had crps of my right foot for over a year and have had every treatment tablet going i now have depression and feel that i can not take anymore i am also about to lose my job at the end of the month if itwas not for my wife who has been amazing i would not be hear now i know this sounds drastic but crps has distroyed my life

[Hidden]

Depression is a symptom of CRPS just another thing we have to fight. 66% of us are so disabled we will never work again and it's hard to accept that but you have to learn to accept that your life has changed forever. You need to look at what you can do and build on it.

Mine has been fighting the Government to find the 100,000's un/misdiagnoed in this country and making sure every medical professional has heard of the condition.

If it's somethingyou'd like to get involved in e-mail me [e-mail]

[welshnut]

CRPS changed my life completely, I was an active person working 60 hour weeks in the Security Industry, in the gym every night, kick boxing twice a week. Now I am confined to a wheel chair, the left hand side of my body in constant pain and my energy levels greatly depleted. Yes depression comes with crps and constant pain which is really the final boot in the guts.

However there is life with crps, I have learnt to accept the help of my motorised wheel chair, my adapted flat, the support of my family. I have stopped fighting against the stiff upper lip and now take the good days when I am blessed with them and on the bad days I try to conserve my energy to fighting pain. It is very hard to cope with but make sure you get the help you deserve, disability benefits and local authority help. I found my Occupational Therapist an amazing benefit as with my physio and local activities like aqua gym. Try not to become isolated and try to maintain a social life it really does help.

nutty

[Yorkshireste in reply to welshnut]

Excellently written welsh nut,I hope things get better lad,you have a great outlook on life my friend,you will be just fine,a dogs wagging tail and happy face is also a fab medication,they are always there for you.

[welshnut in reply to Yorkshireste]

Thank you York I am actually a woman though lol x

[Yorkshireste in reply to welshnut]

Very sorry welshnut

[welshnut in reply to Yorkshireste]

no problem at all

[Hidden]

Hello Bob here

When disability comes knocking we need to understand that our lives become more restricted. You seem to have support from your family you are very lucky with that, some disabled do not have that understanding

The losing of your job is a bit of a bitch, that happened to me twenty years ago so I have seen how inconsiderate the healthy can react.

All I can suggest, look at it as a chance too do something new, Give some thought to what you did before and now consider what this second chance offers you, It may be a positive thing. .

Generally it is no good sitting there, with venom in your heart, if you want to fight the decision regarding your old workplace you could take legal advice, and compensation could be paid too help out while you consider what too do next.

You are not alone when it comes to depression, many who are disabled will have this at some time. The art of this is not to dwell on what has happened, Look forward not back. Corrections in our lives need to be undertaken, it is a learning period for you and will help you fulfil your pathway through life.

Also I suffer from Reactive Depression and life can get you down at some time, although it is important to try and put negative thought to one side, and continue on your journey.

Possibly the State will meet with you and discuss what you are able to do. It may also be useful to talk to your doctor who could get you some support in helping you to manage your condition

Whatever happens you will always have support on this website, even if it is just for a bitch on and get it out of your system.

Remember it is never to early now to begin thinking of your new life, remember life is not half empty, although it is always possibly half full .

All the best keep a hold

BOB

[superannie in reply to Hidden]

very well said as is to be expected from you Bob!

[kmarsham123]

Thank you all for your massagers and comments my wife always kept telling me i am not alone it is really heart warming to know i am not i will try to take alot of your comments on board thank you again

[Yorkshireste]

Hello my friend, you are a mirror image of myself,first of all you have a loving wife,believe me she will help you overcome this horrid beast we suffer from and secondly you had the get up and go to write your paragraph,I've heard the Americans are using mirrors to trick the brain somehow, the results I believe are very commendable,I wrote this earlier,I think it would be good for fellow sufferers to meet up,let's say a free hospital room and chat as it's us who know more about this thing than any doctor,anyway good look lad,all the best Steven.

[briar-rose]

wow, it is very heart warming to hear everyone being so supportive of each other, it honestly is. I was officially diagnosed about 8 months ago with CRPS, althought the symptoms had been going on for longer - it was like they were afraid to diagnose it. I had an accident at work, got bounced between one surgeon his many injections and a physio before seeking a different orthopaedic and trauma specialist myself, got transferred to his care and he immediately diagnosed the injury and had surgery shortly after, sadly after a brief moment where I thought my pain was going, the symptoms of crps flared into life and has been a constant nightmare ever since, starting in my left shoulder it has now spread through all four limbs and just recently have been getting the symptoms around the left side of my rib cage too.

Has anyone else found it nearly impossible to get people to understand how much pain your in and how much it affects your every day life? I have now lost my job, have constant problems with both my parents and my daughter trying to explain just what everyday life is like - I really wish there was some way to make them feel just what it was like without inflicting this terrible condition on them of course.

I have now been referred to yet another pain specialist as the first one they sent me too couldn't help, I needed the consultant who deals with the spinal cord stimulation, so waiting again.

I hope you are all having better luck, and I totally agree more needs to be done to make people aware of this condition and look toward a future of better treatment options for all.

Wishing you well, Amy.

[sarahjd]

So sorry you are suffering x I don't have crops but live with constant pain due to hip problems but cause I am 44 people don't think there is anything wrong and because you don't wear a sign saying you are in pain people find it hard to u derstand . At least on this forum we are all in the same boat, I often think if they had my pain for a day they would understand. Just keep trying to explain stuff, keep pacing yourself and keep going.

[sarahjd]

Sorry that's CRPS not crops !!