CRPS

[debroseuk1]

There is a fantastic group on Facebook called CRPS it has over 2200 members it is a friendly group and you may feel a bit of comfort by talking to them, they will all listen to your story and may have some suggestions for you they also sell CRPS bracelets and even a book written by a professor endorsed by the owner of the page, it's a very good book.

[Chawner]

I will definatly be taking a look at the face book CRPS site. Sounds like a good idea . Thanks for letting us know about it.

[Hidden in reply to Chawner]

What deborah hasn't told you that it's her group and although it is very big if you ask exactly how they intend to raise awareness you are kicked out. I was and I know of 2 others who were.

[Chawner in reply to Hidden]

Well I'm totally shocked to heAr that! Even if I don't like any idea or a suggestion I would never be horrible to them , everyone should have a say and they deserve to be listened to. If you like it is another thing but you can alway keep it to yourself .

Did you find anymore groups to join at all, good luck

[Hidden]

Prefer to work with individuals now there have been a number of attacks by groups apparently because I have succeeded in doing things rather than talking about doing things

[nonestoppain]

Thank you for information.

[debroseuk1]

CRPS has never claimed to make CRPS a awareness page it is a page to provide support to other CRPS sufferers so members can chat together and discuss their own illnesses with each other, that's why we are so big, you were removed from this group and many others due to being rude and upsetting other members.