Hi everyone. I was diagnosed with ET last week. I've been told to start Aspirin 75mg daily and peginterferion alfa 45 mcg injection once a week. I'm 46 and previously had bladder cancer back in 2002. My first follow up appointment is in a month.
What should I be asking of the haemalogist as my brain is a mush at the moment. I've had a good read of men voice which has been very helpful.
Just how draining are the side effects to peginterferion and what sort of infections do you all suffer from. I get a lot of urinary tract infections as I have ongoing problems with my urostomy.
Has anyone been to the patient forums that mpnvoice organise.
I'm sure this will be the first of many posts as I get my head around this latest medical challenge