Overheating at night

[Jansap]

Hi All

I wondered if anyone else has been suffering with overheating at night time.

It’s not hot sweats, my body feels red hot to touch. I don’t have a temperature. I have already been through the change. It wakes me up several times during the night. My skin has become very dry as well since this has started happening and the itching has got worse (not just after my shower). I always drink plenty of water to keep hydrated. I’m on aspirin twice a day. It’s driving me mad.

I was initially diagnosed with ET in 2012 but last year other things started to go wrong in my blood and I now have to have venesections (PV). My haematologist has put me diagnosis as a Myeloproliferative neoplasms now.

I would appreciate any advice. Thanks x

[catwoman2015]

Hi yes i get the same hot at night etc , mine also was diagnosed in 2012 but didnt start HU untill18mth ago . my heamatoligist as always put MPD in my notes etc im due to see him again this wed so will mention the hot feeling i get and in the daytime at times regards Holly

[Jansap in reply to catwoman2015]

Thanks Holly, be interesting to see what your haematologist has to say. 😀

[DScully]

I have night sweats but don’t feel hot to the touch. It’s not uncommon with our blood cancers. Itchy skin is annoying with my ET!! May I ask why 2 aspirins a day? ET and PV are both myeloproliferative neoplasms.

[Jansap in reply to DScully]

Hi thanks for the reply. 😀

I have one aspirin in the morning and one in the evening both 75mg, my haematologist increased it awhile ago when my platelets went over 1000, they have come down slightly now 993.

I have both ET and PV and I think that’s why he changed my diagnosis to a Myeloproliferative conditions. I wondered if anyone else had

had their diagnosis changed, or had original had ET and now

got both.

[DScully in reply to Jansap]

I take one 81mg aspirin

per day. I believe there are those who have both ET and PV. My platelets have been staying in the 700 range.

[Karenann12342 in reply to Jansap]

I started with ET and now saying it is PV . You can have PV with high platelets I was told. I did go see an MPN specialist and he thinks maybe I had PV all along. 15 yrs.

[Pkm52]

Oh, you are not alone with episodic hot flashes at night. I am 66 so it shouldn't be estrogen deficiency. I sleep with the window open even when there are snow flurries outside. When I heat up I cover half my body and pull up my sleeves, pants legs and open my PJ top buttons. I can cover up again in a few minutes. Will be using the air conditioner this summer for sure. Menopause causes "vasomotor instability" ( heat flushing" but I haven't asked about the Hydroxyurea or the underlying disease ET JAK 2 positive. Try the window and bear skin technique. I hope it helps.

[Jansap in reply to Pkm52]

Thanks I’ve been doing the leg in leg out, blanket on blanket off method for sometime now 😀x

[Pkm52 in reply to Pkm52]

Hello,

Your post describes my vasomotor instability (hot flashes) at night and how I deal with it exactly. The window open in a blizzard, uncovering half my body and pulling my sleeves, pajama bottoms up with a fan blowing on me all night year around. The episodes are brief but sleep altering. My husband often says he is freezing. I just keep adding more down comforters.

I have ET JAK2 + and was diagnosed 15 months ago. I take HU alternating 500mg one day,1000mg the next and Aspirin 81mg. twice daily. I will start thinking about all of you at night when I am on fire, wish you all well and hope you are starting to cool off.

[ErinBudblessed]

Hello Friend, Besides the fatique, the after shower itching and night-time overheating are my two biggest complaints. I have ET and Lupus. I sleep in and on 100% cotton with a light fan. I also cut my hair off super short.

[DScully in reply to ErinBudblessed]

Hello...I hate the night sweats with ET, and am amazed I haven’t drowned in bed from them yet! I also have annoying and itchy rashes from the Hydrea I take. It’s always something....

[Annushkah]

So sorry but you have to just ride it out until the next symptom arises. Fluids first thing in am for having sweat at night. Soft cotton sheets so skin breaths and skin sensitivity. Mine passed after several months. Hang tough with meds to bring platelets down and pray!!