I STILL HAVE PAIN IN MY HANDS AND LEGS AFTER MY LAST CHEMO ONE MONTH AGO , CAN SOME ONE ADVISE ME ?

[TAROUZA]

I MADE MY LAST CHEMO ONE MONTH AGO , MY SCAN WAS CLEAR AND MY CA 125 WAS 6.25 , I STILL HAVE PAIN IN MY ARMS AND LEGS AND TONGUE SORE.COULD ANY ONE FELT THESE THINGS AND INFORM ME WHAT TO DO ?

THANKS IN ADVANCE

TAROUZA , LOVE U ALL.

[Hidden]

I'm afraid the pains in your hands and legs will go on and on. I still have them - but greatly reduced- 2years and 8 months after finishing treatment. I think it is more to do with the menopause, although coping with the aftermath of chemo makes it worse and last longer. Your scan being clear, and such low ca125 (I never get the fractions, just the number)is very good news.

Best wishes,

Isadora.

[Frenchdeb]

Try bicarb for the tongue! Sloosh it around your mouth for 3 to four minutes 6 or more times a day. I've found it great.

As for the pain, well, I'm still having my chemo and I admit I do take painkillers as I had a road accident three years ago and the pain where all the metalwork is in my knee really affects my ability to sleep which I just wasn't prepared to put up with. My gp put me on to tramadol/paracetamol. It's surely at least worth talking this over with your doc', I would have thought? The main thing is not to suffer in silence, you don't deserve OC, let alone the pain.

Congrats on the great results, btw. Fingers crossed they hold up.

xx

[TinaWright]

It was interesting to hear from Isadora who is still having pains 2 yrs 8months after chemo. I had never even given it a thought to being related to the surgical menopause.

I finished my chemo in April and the joint pains are getting so severe I can hardly walk each end to a day. I do also suffer from a chronic pain condition in the muscles called fibromyalgia which I enherrited from my mother/father., but this joint pain is very new to me, I had them mid cycle of each chemo but sinse the treatment ended it has worsened.

Today I found out I also have the faulty baca one gene enherrited from my mother, so next year I have the decision to make about opting for double masectomy as a prevention of breast cancer, my risk is 80%.

It sounds rather drastic but I do wish I was taken seriously enough to check for the faulty gene a few years ago before I got OC. Had I known before what I know now OC may have been avoided, so I will do my hardest to avoid breast cancer.

I love to hear from you ladies with low CA125 results mine was 11 the last time, being tested again next week.

Good luck everyone xx

[Hidden in reply to TinaWright]

...and good luck to you too. Hoping the ca125 is 11 next week!

Isadora.

[Frenchdeb in reply to TinaWright]

Tina, I have a friend facing the same decision - a really tough one but her doctor has been fabulous and she's having the double mastectomy and reconstructive surgery all in one go. However, the prognosis is a reduction in the chances of her developing breast cancer is reduced to 2% which is what persuaded her to go ahead. Good luck whatever you choose to do.

[TinaWright]

Thanks Frenchded, this was like music to my ears, please wish your friend all the best of luck - please let me know how she gets on. A reduction to 2% wow isn`t that fantastic news and so worth it all.

love always from Tina xxx

[Frenchdeb]

I will keep you posted as to her progress. She's not on this forum as she doesn't actually have OC but I'll get her to look in as I think there's a lot which she'd find helpful here.

Good luck to you, Deb. xx

[Frenchdeb in reply to Frenchdeb]

Have a look at this, Tina

breastcancergenetics.co.uk/

[TinaWright]

Hi girls,

just thought I`d check in on you all and let you know my CA125 has dropped to 9 in the last 12 weeks so I was as chuffed to bits about that.

I am still having horrendous joint and muscle pain that is getting no easier. I have my next oncologist appointment next wednesday so i will let you all know what they say. Seeing someone new as my oncologist is on maternity leave at the mo. I sure hope you don`t suufer this much Tarouza, I hope my pains are down to the FMS rather than the chemo side effects. It is rather reasurring that this is a normal side effect but do hope it will get better in time, if I lay on my right hip I wake in agony, back hurts and so does right arm so not sure how to find comfort in order to get a better nights sleep. The pain meds just seem to upset my tummy and I take tummy pills as well. Feeling a bit like `Annie get the gun`, laugh! Oh well, things can be worse, things can always be worse. I sure am glad to be here to moan about it.

Love to you all, hope you all had a fabulous Christmas in spite of everything else

Tina xxxx