In June 2012 I was diagnosed with ovarian carcinosarcoma (usually described as 'rare and aggressive') at stage 1c. I've had the total hysterectomy and will shortly will be having the 6th and final (fingers crossed!) dose of carboplatin. So far the ca125 has been well below 35 and a ct scan in late September found nothing (other than gall stones).
My specific questions are:
How often should I be seeing an oncologist?
How often should I be getting a ca125?
How often should I be having a ct scan?
Is there anything else that should be happening?
All basic stuff, but I'm keen to avoid falling into an administrative hole that could be detrimental to my health. Whilst the actual treatment I've had has been good, there have been several worrying times when the admin system hadn't picked me up until I started asking for action.