Hi I'm new. I had a mucinous tumor removed last year aged 32. Unfortunately it had already ruptured prior to surgery. It had grown to football sized and was undiagnoised while I was pregnant. I had a miscarriage at 23 weeks just 3 days before the surgery
I had completion surgery of a TAH a few months later which showed no spread and graded me as 1C.
I started to get pain a month or so again in my left side and my ca 125 as been creeping up. A MRI and CT scan have come back as showing growths in my peritoneum and into the bowel but near my coccyx not where I feel the pain. I have been told this area looks like "thickened tissue" which maybe my ometum -not sure why this hasn't already been removed!
So it looks almost certain I have a reoccurence. My consultant says he won't do chemo if it's all still borderline but it may have transformed to a higher grade. Surgery is booked for the 11th August to try and get rid of it all.
Anyone else any had a re-occurance of a borderline tumor?? I could really do with some virtual friends to help me though this! My family are being great but I am trying to keep calm at home because of our two small children.