Hi all, Ive just joined the site today, A little about me.
Im 32 with 3 young kids. have previously had 2 huge ovarian cysts removed, and in December 2011 went back with my 3rd suspected one which was confirmed by ultrasound. The cyst was so big that they could not tell if it was 1 cysts or 2 or what it was attached to, so a CT scan was ordered. The CT scan didn't confirm much either and was just told it had to come out.
When a letter landed on my doorstep stating i was a malignancy risk of 90 i was mortified as this was the first mention of cancer in my journey. I googled and found that this isnt a very high mark and a mark of 200 - 250 would show that cancer was present so that went to the back of my mind. I was in physical agony this time round, with a and e visits, and lots of pain killers. i was in bed for the last 2 months not being able to get comfy. eventually the op date comes around and i insisted on them removing my ovaries. i signed my consent form to state that if anything looked suspicious they could give me full hysterectomy.
When i came round they informed me that they removed my ovaries and fallopean tubes. My surgeon said he would contact me within 6 weeks for the histology results and that was that. When the call came in and appointment came to tell me they found cancer i was gobsmacked. He did say that he couldn't see any further cancer in my body but because he broke the cyst up i would need chemo.
Eventually seen an oncologist who informed that the cancer found is a mucinous carcinoma that is normally found in the gut and very rare on the ovary, so a pet ct scan was ordered. He called is secondary ovarian with an unknown primary. This showed no active cancer. Another appointment with the oncologist who honestly seemed quite confused as it should be from the gut not the ovary, but no other cancer was shown. He agreed to give me chemo for ovarian, 6 sessions every 3 weeks which should hopefully start next week, but wants to confirm with the upper gut oncologists if they want me to have a cocktail of chemo instead.
Ive done my own googling and this cancer is very rare in the ovary but does happen.
A day after being told i honestly don't know what to feel. I should be happy that there is no more cancer showing in my body, the chemo will hopefully eliminate any traces that escaped when operated on, but i cant help but feel if this isn't an ovarian cancer, if there is anything loose, the chemo is pointless if it doesn't target the cancer. What if the cancer is so small it didn't show up on the scan. I'm honestly lost with it all.
I also forget to ask the ultimate question of if he still categories me as unknown primary or actual ovarian cancer now.
Just wondered if anyone else also has a mucinous carcinoma of the ovary and has a similar experience, or any experience they are willing to share.