Absolutely fed up

[Peewe]

Hello Peewee here just an update. Today I heard finally from Royal Marsdenbthat they will NOT take me on as a patient. I am so upset their excuse being I am out of area and if my oncologist cannot provide treatment that they could then and only them would they take me on. Quite frankly I am thinking all sorts has my oncologist stuck the knife in and done something because she's annoyed I wanted to go somewhere else I do not know what to think. I do not understand I thought you could go anywhere of your choice, the consultant of your choice why am I being denied. It is not just about the treatment but the aftercare it is non existent I feel completely traumatised by this and I am usually very mentally strong but this is causing me such anxiety.

I am now left with the choice of paying to see Christina Fotopoulou £500 for one consultation or being forced to go back to a hospital and oncologist who cannot be bothered with me. Also it will not just be £500 I have train fares to find, and extras on top I am not sure I will be able to do it financially.

Tomorrow I am going to speak to my doctor if possible and ask him all this but does anyone know how to get a private MRI because my doctor will not refer me for one and my oncologist will not either just CT scan albeit I cannot have contrast dye so when I go back to her she is so vague because she says she cannot see much. I have asked at half dozen times and she refuses to do one. I would like to do one for myself do I have to get referral from doctors for this if your paying?

sorry to ramble on but needed to vent

peewee

[MillieEllie]

Hi

Sorry to hear all this. I recently got a private MRI from a company called vista health. They have various locations. One of their own doctors will call you and refer you so you don’t have to use your own GP. The referall was £50 and I think the MRI for abdomen and pelvis was about £700. They also do ct scans. Hope this helps you

Jennie x

[N-A-58]

My mums referral was refused from the Royal Marsden because she was ‘out of area’. I asked my GP why it was even an option if they can refuse and she couldn’t answer. I think it’s because they are so inundated with second opinions. I don’t agree with it but wanted to let you know that my mums was also refused.