Clear cell reoccurrence 6-don't think I'll ever be out of the woods :(

Hi Everyone,

I had a laparotomy just over 3 weeks ago. A large tumour growing between my stomach and bowel was removed. I've recovered really well since, no issues from surgery at all.

However, it has been recommended to me I have 6 cycles of Gemcitabine and Cisplatin because I still have evidence of disease in various places.

It wasn't the news I wanted to hear but if I'm honest knew it was coming.

Ladies, do any of you have experience of this regime for CCOC reoccurrence? If so I'd love it if you could share your experience.

Thank you in advance

[A1r1t]

Sorry I have no experience of this but just wanted to wish you well, love and 🤗 from Ivy.

[carrotmunch5]

Good morning Cazzar. I am so sorry to hear you had a such big operation and spread of the cancer. But pleased to hear you are recovering well. I don't have experience on what you had. ( I had liver resection about 5-6 weeks ago, me too, recovering really well😊) Oncologist tend to offer us gemcitabine combo chemo ( I had Gem too with ceralasertib for CCOC). I too still have tumours in a few other places. Feels like it goes on and on, but one day at a time. But slow process, one by one either stable or disappeared.

Hope this combo of chemo stabilizes the disease & disappear and stop them spread / recurring even more.

There's a support group coming Thursday at Overcome, might be able to help?

healthunlocked.com/redirect...

Sending you lots of love and hugs

Norie 😊🙏🩷

[Neona in reply to carrotmunch5]

That’s interesting- I have been on a trial for single agent Cerelasertib for 5 1/2 years with a maintained partial response. Scans have slipped a bit lately though. How well did it work in combination with Gemcitabine please?

[carrotmunch5 in reply to Neona]

I was gem & ceralasertib for a year. Two of tumours which they were the most concerned disappeared. Then went ceralasertib only for now two years. For me, gem combo worked well. 😄 Initially when I came off Gem, they weren't sure which worked well.

[Neona]

Are you on a trial? I am wondering how you have msnaged to access the Cerelasertib. I desperately hope it gets approved for ovarian cancer as I live in fear of the trial stopping me having it. Some of my tumours disappeared quickly, some slowly, some didn’t disappear at all. I haven’t had any reduction since the dose was lowered to 80 mg twice a day.