All in this together: You can read my bio but... - My Ovacome

My Ovacome

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All in this together

bogeygolfer profile image
12 Replies

You can read my bio but basically, diagnosed 29 years ago when I was 34 years old with OC. I have been very fortunate not to have had any recurrence but recently had a good scare. Preventative lung ct picked up an incidental finding which frightened me for past two years. "Inteterminate soft tissue lesions in presacral space, could be post surgical but can't exclude peritoneal, metastatic seedings." Fast forward - after a repeat CT/contrast last month, to check for stability, there was a minor change in the size of the lesion. At this point it was recommended to get a PET/CT which I finally got the courage to do. I feel so bad for many of you that have to wait and wait for the results. I had my results within the hour on MyChart. No evidence of malignancy. I was thrilled. I point this out and decided to tell this story because I know how you all live test to test, CT to CT. Don't hesitate to push the envelope with your care team, obgyn, oncologist or whatever you need. Peace of mind matters most. I'm always here if you ever need an ear to listen. Just because I had this 29 years ago doesn't mean it's not with me every day. Keep on fighting!

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bogeygolfer
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12 Replies
wendydee profile image
wendydee

Glad you’re still doing OK! I often wonder, too, if I should still be on this group, replying occasionally…after 20 years of being OK 🤞.

However, as you say, there’s always that little voice in the back of your mind, “Is it back?”.

It makes sense to check up whenever that little voice appears.

May you continue to do well.

Love Wendy xx

Trickysite profile image
Trickysite in reply to wendydee

two amazing ladies!

0462County profile image
0462County in reply to wendydee

Please stay on the group, it gives me hope. I was diagnosed with Stage 2b high grade last year.

Love and hugs. Beth x

mrstadpole profile image
mrstadpole

Amazing both.Such inspirational posts.xx

A1r1t profile image
A1r1t

Thanks for the positive post! 💖

Goodgirl98 profile image
Goodgirl98

loved to read both your posts. please keep inspiring us! Wendy, it was so good to read your bio and seeing how you are giving back to the community. I am struggling where I live with where to start; now I am determined to try more.

wendydee profile image
wendydee in reply to Goodgirl98

please feel free to message me if you need any support with this xx

0462County profile image
0462County

Thank you for your post. It gives me hope. I was diagnosed with Stage 2b high grade last year.

Love and hugs Beth x

wendydee profile image
wendydee in reply to 0462County

All the very best, the results for treatment for this are promising 🤞xx

bananayo profile image
bananayo

It’s always great to read posts from ladies that are doing so well years after diagnosis, keep them coming 🥰 ! X

Havidog profile image
Havidog

You are amazing and inspirational. So happy that all is well

Mammi profile image
Mammi

wow 29 years , that’s fantastic & Thankyou so much for posting this , it is appreciated.!So glad too that the scare was unfounded, never able to feel totally clear are we but one day I’m sure science will find a way!! Till then you long time survivors give us hope so a big Thankyou for sharing & keep enjoying life .Hugs Dee X

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