Hello all you amazing people.
I rarely post on here, but pop in to see what’s going on every now & again.
I feel so lucky to still be here ( over 4 years after diagnosis). Like us all, it’s been a rollercoaster ride. Have a lot of support from family, friends & professionals who have helped make the ride smoother. Since July 2020 I take Niraparib everyday which is keeping my disease at bay.
I still get times when I feel overwhelmed with what I ( & my family) have been through. I think it’s harder for those close who are scared of losing you.
My body shape has completely changed which I still find difficult to accept. I was lucky to have had a flat stomach until my first op & have had to get used to all the extra lumps & bumps associated with abdominal surgery. I appear to be prone to adhesions ( which the fab Prof CF unravelled during my last op but mentioned they’re likely to return) .
I find many clothes uncomfortable ( I used to wear jeans most of the time) but recently ordered dungarees which I find so comfortable. So much so I own four pairs now & pretty much live in them. I try to pretty them up with a feminine blouse worn underneath. In summer it’s easier as dresses without tights can be worn. I do have some pull up jeans which I wear at times but they become uncomfortable as the day progresses.
Anyone else got any suggestions of clothes you find comfortable?
Thank you all for being on this group - it’s so full of love & support. Take good care of yourselves.
Love to each & every one of you xx