After meeting with my onc on Friday and reviewing my liver issue she either wants me on piqray or taxol. We are doing a liver biopsy to make sure may cancer hasn’t changed or is there another mutation or if my piq mutation has went up (last checked I was less than 1%). I’m off of meds for the moment to give my body time to recoup before my next treatment.
Can anyone provide some good insight for either one. Everything I read about Piqray scares me. I still want to have quality of life. My daughter is starting college and I want to be able to watch her play her sport. TAI
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Wildcat1
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I have been on Taxol since March. I had it full dosage actual back in the day when I was first diagnosed with stage 3B in 1998. I have found that weekly Taxol at this much lower dosage is very tolerable. In fact, I have felt a lot better on this than I ever did and Ibrance
How are you doing? Did you start taxol or which? I continue to feel great on the reduced taxol dosage. With that said, the reduced dose is all they do at this point of disease. Back 24 years ago, taxol was more than twice the dosage than now. I feel good all week. The day of infusion, a bit out of it for several hours but that is more from Benadryl given with drug. I did the steroids ONLY for one month because they are problematic and create immunity issues. They had to give to me the first round of treatment to make sure that I was not allergic to it. I wasn't so i asked to stop that and have zero problems NOT having that. Then my weight is only 105 right now, I asked if they could reduce slightly which oncologist did after a few months on. She did that as well. I am treated by Dr. Claudine Issacs at Lombardi Georgetown and she is considered the top onco in the Washington DC area. So, I feel like I am in good hands but I still continually ask questions and go with my gut. For me that is critical!
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