Caelyx side effect advice on scalp ache

[LittleMissMerit]

Hi Ladies, My Mum has had her first session with this drug, it’s not going well and I think she’ll be changing drugs again, but in the meantime she is telling me her hair has been falling out a bit, and that she is experiencing no headache but scalp ache particularly when lying down at night. Anyone any advice to help alleviate this pain at all?

[Hidden]

My scalp ached whilst on Caelyx, I didn't loose my hair but it did thin on top quite of a lot, I believe it was this that was causing the scalp sensitivity. It didn't last long a few weeks I think. You can buy night caps for hair loss that might help. Good Luck x

[Lesinbeds in reply to Hidden]

Hi Lyn, I’m starting caelyx soon with carboplatin, did you have carboplatin too! I’m not sure how often I’ve got to have it yet! I was on niraparib but it stopped working so I’ve got to have 6 cycles! Happy days! To be honest I just want to get started and attack this little demon 😊

[LittleMissMerit in reply to Lesinbeds]

She (my Mum), had carbotaxol 1st time round and it was an nightmare so just went with the carbo one. I love your fighting spirit though, it seems to have left my Mum at the moment, she has said she doesn’t want to use Caelyx again.

[SUE7777]

When my scalp was sore due to hair loss I washed it with Aqueous Cream and it helped a lot, you can also wash with it and use it as a moisturiser. Best place to get it is Superdrug, it's very good and useful stuff. Hope that helps. Sue xx

[SUE7777]

Baby shampoo could also help. Sue xx

[bluepeterella]

I didn't have scalp problems but I felt very nauseous after my first Caelyx. My oncologist lowered the dose for me and after that it was tolerable. It might be worth asking if that's an option?

[mrstadpole]

Is it too late to ask to have the cold cap? This was suggested to me whilst on Caelyx. No problems at all with hair loss or scalp.xx

[Lesinbeds in reply to mrstadpole]

Hi Mrs Tadpole whilst on Caelyx what other drug was you taking with it? I will be taking carboplatin with mine! I was lead to believe that I would just have hair thinning! And wouldn’t need the cold cap.I know any drug with taxel/taxol causes hair loss but I though this would be friendlier!!

I’m getting really worried now as to whether I should have the cold cap!

Thank you xx

[mrstadpole in reply to Lesinbeds]

Hi Lesinbeds

I was only given Caelyx but it was suggested by a nurse that I have the cold cap to stop any hair loss. When I was first diagnosed the chemo was rushed through and I didn't know anything about a cold cap. Hence I lost all my hair whilst on Carbo/taxol.

After Caelyx I was given Olaparib, a PARP inhibitor last June and have been on it ever since. Thankfully it is working really well for me. I am BRCA 2 positive though. Hope you can get it sorted xx

[Lesinbeds in reply to mrstadpole]

Hi Mrs Tadpole that is great news for you. I’m so glad it’s working. I’ve been on Niraparib but for some reason it’s stopped. I’m due to start my 3rd line of chemo this month. Take care xx

[mrstadpole in reply to Lesinbeds]

Good luck with your chemo Lesinbeds. xx

[rosebine]

My hair has thinned a lot on top with caelyx, grumps me a bit as I have always had very thick hair, now I look a bit like Friar Tuck. Scalp was a bit tender at first but thats gone