Trametinib

[Jonich]

Hi everyone Are any of you taking trametinib and if so would you mind telling me what side effects you have had? Thank you so much 😊😘

[thomas62]

Hi Jonich,

I don't think Trametinib is available in GB as yet. Still a relatively new drug and it has to go through all the formalities of NICEetc. and there's the question of whether NICE would agree to fund it! Hopefully they will. Quite a number of us on this site, particularly with low grade oc are awaiting it and hoping it is good news. Best wishes. Gwen x

[twiggy66]

I’ve been on it for nearly 4yrs now & my side effects were all skin related, but if you get the chance to take this drug I would & stick with it, mine were really bad to start with it’s not until you look back photos you realise how bad, but they reduced my dose & I have been coping for nearly 4 yrs now. I think my body is saying....well she’s gonny keep taking this drug so we’re as well getting used to it. Lol. Stay strong

Isobel xx

[Melnie]

Hi, this is what is recommended for me too, thanks guys for sharing about skin issues, we'll wait and see what happens to me, I'm hoping I can have it without having to have chemo again for the 3rd time - please please