Anybody know how mad Molly is.

[1916]

Just wondering if anyone knows how Molly is? I have a feeling her surgery was due soon.

Many thanks

Ann xx

[Madmolly]

Hi mad molly here not been on as appointments all over the place. They have now informed me that I am not having my op at. RAH but now Glasgow Royal Infirmary due to the fact of full hysterectomy plus removal of my omentum booked in for Jan 28th pre op assessment on 22nd at Stobhill Hospwas a bit overwhelmed by all the different places I had to attend on different days but phoned up and managed to get a couple combined which has alleviated some stress. My last scan was positive they said everything has halved since last scan. Originally ca 125 was 5871 after 3 rounds of chemo, taxol and 2 of avastin now down to 54. My legs have been extremely painful and living on pain killers but trying to keep my health good prior to op. Will be following up after op with 3 more cycles of chemo then on avastin alone. I am on the ICON 8b trials.

Thank you so much for wondering where I was. I seem to knowhow to reply but forget how to come on and just make a statement. I do follow all of you. Some give me hope some give me a laugh and all of you make me know I am not alone. 1916 God Bless you. You made my day today. Still fighting the battle with you all. Such a great army

[1916 in reply to Madmolly]

Hi Molly.

Thank you for getting back to me, I was just wondering how things were. It all sounds positive for you just take it easy and get through the next few weeks and look forward to the summer.

Keep us updated and sending you lots of hugs.

Love

Ann xx

[shortfriends in reply to Madmolly]

Great to here that you are still battling on Molly, it all sounds very positive for 2020 as Ann says although I am sorry about your legs. I have sore legs but the bone pain seems to be caused by periphilal neuropathy and I find that flarin tablets help but I don't know the cause of your pain so can just sympathise. I am swollen in most places, oedema - it doesn't hurt but my toes look like chipolata sausages and my legs like very plump trotters, I could just stick an apple in my mouth and pass for a roast dinner!!lol. Remember after your op to hold a cushion or pillow against your stomach when one of the many posts here makes you laugh. This forum and the Macmilan one always make me feel better and this includes you. You will never be alone here will all your new friends. I hope that all goes well for you and look forward to you letting us know how you are improving. I will be thinking of you and hope the trials are a success. Love and hugs Pat xx (short friend)

[Madmolly in reply to shortfriends]

Pat so nice to receive your post. I do not feel as knowledgeable as most of the ladies on here so not sure if it is neuropathy just been informed side effect of chemo that attacks the joints. As for the oedema something I have been used to since my first child was born 50 years ago, my ankles and toes being constantly swollen but did not have the usual accompanying high BPnelieve its week capillary walls all of my three children weighing over 9lbs at birth. I think my local community think I am poverty stricken as seen going about with flip flops in winter. Feet constantly hot and cannot stand them being enclosed in boots. Just as well I have not had my op yet or would have needed a cushion after reading your comment. Have very visual imagination and could just picture you with that apple in your mouth. I used to take frusimide for oedema until I ready somewhere it was bad for your kidneys. Albeit it is twice as bad since I started treatment so will ask about the tablets you are on. I am alright at replying to posts but forget how to initiate one but will try and work it out tomorrow. Thank you so much for your support and humour. I am a positive person and ready for battle with an army of family and friends behind me. Continue to look after yourself. Margaret. My family call me Mad Molly😜

[shortfriends in reply to Madmolly]

You are welcome, I look forward to hearing from you, good luck for the forthcoming op, I hope all goes well, Pat x

[delia2 in reply to shortfriends]

Hi Pat. I am wondering if you wear compression stockings for your edema? Is it from lymph nodes or some other cause. I wear the stockings every day and it really helps. In summer it’s not great but in winter they keep me warm!

[shortfriends in reply to delia2]

Hi Delia 2, yes, I have the lovely beige ones as they had no black ones left. Sometimes I don't need them, the swelling comes and goes, other times I can't summon up the energy to put them on! You are right though they do help so I will persevere. Hope you are feeling as well as possible, Pat x