Update from the weekend.: Evening all. I can now... - My Ovacome

My Ovacome

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Update from the weekend.

1916 profile image
1916
7 Replies

Evening all.

I can now update you on the latest, I left a message for my Nurse we were just on our way to AE would you believe , we explained what had been happening and asked her what she knew about scan.

It looks like there are traces on the surface of my liver help. That explains some of my symptoms!!

The trouble is I've had 3 lines of chemo in 2 half years finishing the last August, is there anybody else like me or had the same happen, I feel so worried all the time feel like I have no future isn't it horrible.

The nurse said she.will try and get me a ultrasound to see if they can drain me only of it's bad enough. My appointment is on the 19th November so will have to just wait.

Isn't it soul destroying what we have to go though so tuff. Its not like me normally carry on regardless just feel negative with not knowing.

Anyway friends thank you all

Love Ann xx

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Pendle99 profile image
Pendle99

Dear Ann,

Sending you love. This disease is an absolute b*****d. I have CT scan this Thur and await for a date to see my cons and get results. Am also poo scared and keep crying. And like you, this is not normal behaviour for me.

I don't know what 4th line treatment is (?gemcitabine). But there might be a trial you are eligible for.

Give yourself a little break and have a good old cry. It is okay to have times feeling miserable and once you have a plan back goes on those big pants and the fighting resumes.

Hugs from your sister warrior,

Pen xx

1916 profile image
1916 in reply toPendle99

Thanks Pen

I have had gem with something else last time can't remember what .

Anyway good luck for your scan .

Love Ann xx

Pendle99 profile image
Pendle99 in reply to1916

Keep in touch as I feel we need each other at the mo xxxxx

1916 profile image
1916 in reply toPendle99

Indeed xx

Lindaura profile image
Lindaura

Penny is right.

There are plenty more options.

But when we get bad news, we’ll, even I have been known to cry.

It’s that slapping you down factor.

We think we’ve got it knocked and then wham.

Ouch.

But only for a little while. Until we work out our next plan.

Like Penny, you might be headed for a clinical trial.

They say that women in clinical trials do better than those without, so its worth a try.

Take heart.

You are in the right track.

Your team knows you are in trouble.

There’s lots of further lines.

Have a good cry and then go to the Uk Clinical Trials Gateway.

Put in Ovarian Cancer and th e location you can get to.

Good luck.

Gentle hugs,

Laura

1916 profile image
1916 in reply toLindaura

Thanks Laura.

I just feel so poorly thanks for wise words.

Love Ann xx

Hi Ann. I don't know your situation but I just have 1 quick comment that I hope will help.

You mention traces on the surface of your liver, so I just want to stress to you that ON your liver isn't nearly as serious as IN your liver. Best wishes. Pauline.

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