Hi everyone - I have joined this forum in commemoration of my wife who passed away exactly 18 months ago today. She was active on the forum under an assumed name and always interested in the welfare of other women going through their ovarian cancer journey. She was diagnosed at a comparatively late stage but her feeling throughout was that she could navigate a path through to good health and I genuinely believe she very nearly did but for a quirk of fate at the end. My message to everyone is not to despair and engage in positive thinking (its power can not be overestimated).
I have just completed a book on her cancer journey and it's my intention that ovarian cancer charities globally will benefit from any proceeds. It details the many treatments she tried and all the things she discovered in four years of research on the internet and includes discussions and interviews with medical and scientific experts. From holistic centres in Europe to state-of-the-art immunotherapy serums to conventional treatments it is a story about the drive to get well again and the determination to see her daughters grow older.
Her journey included taking part in ancient practices, fasting and a whole range of diets and supplement plans.
The time she spent daily scouring the internet, reading, investigating and interviewing produced priceless information which could benefit countless women in the same boat. This is the story of everywhere she went and all that she tried. It is also a story about living in the present, gratitude and the second love of her life after her family - rock music!
I am not advocating that anyone purchases the book, but you may wish to look on the website I have created waydowninside.com to find out about Seuna's story and her life.
It was her belief that a cure was just around the corner and trying to find this truly became her quest during her journey. I would be happy to answer any questions anyone has and give you our opinion on the success or otherwise of any of the treatments she tried.
Wishing you all the best.
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Seunasquest
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So sorry to hear that you lost your wife to OC. You have also been on a journey with her and now without her. I am sure she would be made up to know about the book. x
I am also sending my best of wishes to You and your children . It is such a beast of a disease.. I am sure your wife was a brave souls trying all those different routes to health. I am interested in alternative directions however I’m just singlyabout to try a new clinical trial (!) so this will certainly be on hold until I’ve finished this and if they tell me it hasn’t worked. My last attempt I think as they have told me I’m chemo resistant now.
A positive attitude is of course important although I am finding this increasingly difficult. And am so sad your wife also passed away makes it real how cruel this can be.
Even with someone so determined and investigative. Thoughts are with you and welcome to this forum! T x 🙏
Thank you very much. The very best of luck with the clinical trial. May I ask which one it is? My wife was told she was platinum-resistant and I think her spirit sagged after that but she rallied again and tried many other things. I do believe (and she did too) that we are getting closer to discovering different things which will really impact on this disease. She felt ( as I did and continue to) that she was part of a collective force, as everyone on this forum is, to find a cure for/combat the effects of OC. Sending positive thoughts to you ahead of the trial.
Thank you so much - yes I’m also plat resistant and so the trial is Onxy it is something I see a glimmer of hope in so fingers and toes crossed! And good thoughts to you as you must miss your wife so much. She would be proud about the book I’m sure - hope it goes really well.
I know the Onyx trial has shown some very promising results so the very best of luck with it. Re missing my wife, yes every minute of every day but I know she is with me in some capacity. Thanks again.
So sorry for your loss. Your wife sounded like a wonderful woman striving to find a cure for this dreadful disease. You and your family must be so proud of her, although it can be awful watching someone you love dying so I hope you are all starting to come out of the fog.The book sounds fantastic and I am sure there will be plenty of people wanting to read it. I know I will be looking at the website. I suspect you will have found it very cathartic writing the book.
Sending you all lots of love 💕 hugs 🤗 and lovely memories. Xxx
Thank you Trathi. She was indeed wonderful and I am still quite raw to be honest but when you have young children you have to try to move on. Re catharsis - I thought this would be the case but actually it was a very difficult process, recollecting everything and realising where we had perhaps made mistakes. Thanks again for your message.
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Run free, lovely ScardyCat
A big thank you
My wife has stage 4 Low Grade serous ovarian cancer
Advice please all you wonderful ladies !
