Now terminal and going fir a 2nd opinion

[Blondie75]

Been given some hope. I posted on here about 1 week ago as I was given 12 - 18 months. Not one to give up the fight as I have to for the sake of my 2 young children (10 and 13). I went to see my gp on Monday to be referred for a 2nd opinion at the Christie and have an appointment on 27th Nov. I've got everything crossed I'm suitable for cytoreductive surgery with HIPEC as it could just save my life. It's on the outside if my colon, numerous mets in my peritoneum and a new spot on my bladder. Never give up the fight. Cancer sucks

[Katmal-UK]

Hi, praying that the Christies can come up with something for you xx Please let us know how you get on. Im at Christies and they are great xx

[Blondie75 in reply to Katmal-UK]

Thank you. I hope you're doing ok. It's just given me more hope xx

[CallmeMum]

That’s quick! Usually doctors take forever! Hopefully something can get done xxx

[Blondie75 in reply to CallmeMum]

I know and relieved. I told my gp I don't want to dilly dally around as time's not on my side. He promiised to send it the next day and he did. 2 weeks later I have the appointment thank goodness xx

[CallmeMum in reply to Blondie75]

To be fair I took my son to the doctors and saw the nurse practitioner (he has a skin condition that his brothers have) saw her for asthma and she referred him to the dermatologist I had a letter 2 days later, the scary thing is she was better than the doctors so in future I’m going to ask to see her rather than a GP xxx

[Solange]

So pleased for you! Fingers crossed the Christie can help you and come up with something to keep you here with your youngsters. Can only imagine how desperately you need that. Sending love and good luck wishes.

Solange 😊🤞💐

[Blondie75 in reply to Solange]

Thank you xx

[Manchesterlady]

I’m at the Christie, they are just wonderful , I hope they can come up with a plan for you . Thinking of you xx

[Blondie75 in reply to Manchesterlady]

Thank you. I've heard so much good stuff about the Christie xx

[Maus123]

Fingers crossed for the 27th. It's a harsh disease. Let us know how it went please. Sending comfort & hope. Maus

[Blondie75 in reply to Maus123]

Thank you. I will xx

[Cropcrop]

The second opinion is great news, the Christie are amazing, I’m a patient there, I believe in them totally and think that if anybody can offer you something it’s them. Good luck with your appointment, let us know how it goes lovely ❤️Xx Jane

[Blondie75 in reply to Cropcrop]

Thank you. I've heard so many good things about them. I hope you're doing ok xx

[lynn6156]

Got everything crossed for you. Have not (so far) been a patient at Christies but worked there as a nurse for some years and thought it was an amazing place with lots of innovative stuff going on.

Lynn

x

[Blondie75 in reply to lynn6156]

Thank you xx

[bellalife]

Hi Blondie75, defying the odds is what it's all about! You have such a great attitude and I'm amazed at your tenacity.

Just a few words regarding your children. My mother passed when my sister and I were only 6 years old (twins) and my two brothers were 10 and 12 respectively so I know the pain of losing a parent at a young age. If you have the energy, prepare a letter or letters to each of them separately. I would love to have something from my mother that she wrote and prepared just for me. Of course telling them how proud you are of them and mention all the things you love about them...their smile, their laugh, their sense of empathy, whatever it is. Mention that no matter what happens in their life you will be looking over them.

Second, which you might have already done (who doesn't own a smart phone), prepare a short monologue for them and record it. I would love to see my mother's face and even just hear her voice. I'm 50 and back when my mother passed, these tools really weren't available (she didn't write us letters either).

Third, don't make any promises (ie. I promise I won't die). My mother, who of course would have done anything to keep this promise, made this to my brother on one occasion shortly after her diagnoses. After she passed, he remained angry at her for a long time.

Prepare for the worst but fight it tooth and nail! Wishing you all the best! Bellallife.

[Blondie75 in reply to bellalife]

Thank you. It must of been really tough of you all. I've already set up a joint e-mail account for them both for stuff like that. Photo's of us all, things that make me proud. Videos of us. I've never promised I won't die. Going to write letters for when they graduate, get married have kids them selves and also birthday cards until they both get to 21 xx

[bellalife]

Good for you! My mother only lasted a year to the month she was diagnosed so I'm not sure she had the time? Worse comes to worse, they will have these keepsakes forever! You are an awesome Mom! Bellalife.

[Blondie75 in reply to bellalife]

Thank you. I try my best. This is the 2nd time I've had cancer. Had 3 years of remission and the bloody thing came back with avengence - grrr! Determined to beat this and fight with all I've got x

[Hidden]

wishing you the best with your appointment, a second opinion is always a wise thing

[Blondie75 in reply to Hidden]

Thank you xx

[Bhuvank]

dear, you will get cured from these and live longer.

[Blondie75 in reply to Bhuvank]

Thank you xx

[Naimish]

Hi, my wife was diagnosed PPC 3C in Dec 2015. Underwent cyroreduction with HIPEC followed by six cycles of chemo IV as well as IP. Three years later and one minor recurrence later for which she is completing her oral chemo, she is doing well. Her prognosis was 5 years but I'm sure that she has another 10 at least (God Willing). Reason I'm saying this is I laud your positive attitude as it's the way to go and Keep The Faith.

Naimish

[Blondie75 in reply to Naimish]

Thank you. I hope your wife is ok xx

[Perthgirl]

Hoping for a great outcome from Christie's for you. sending strength and positive thoughts 🌹

[Blondie75 in reply to Perthgirl]

Thank you

[Tesla_7US]

This surgery can save you. I had everything done which they plan to do to you. You will live. You will have a good quality of life. You will have more time with your darling children. Never give up.

[Blondie75]

Thank you. I just hope I'm a candidate for it. Did you have it done at the Christie? xx

[Tesla_7US in reply to Blondie75]

I'm in Seattle, USA.😊

[Naimish]

Thank you , she is as well as well.can be and sends you her bests

Naimish

[GINI-54]

Sorry to hear your news, but with your positive attitude and fighting spirit I’m sure you will prove them wrong. Mind over matter girl! 😊 xxx

[sticky3006]

Everything crossed for you Blondie 75. Its at times like this that we must speak up for ourselves and fight with all our strength. We must always question decisions and that is exactly what you're doing. Good luck and let us know how you get on. My daughters are now 11 and 15. This has been an awful year for us all as a family but their response to my diagnosis has astounded me. Their maturity and empathy has been so amazing to witness. As a family it has brought us all even closer. xx

[Maxjor]

That's great you have your appointment so soon. Get all those records together and list your questions --wishing and hoping for you that the plan is a good one and they can start soon. You go girl. You've got lots of fight in you. Looking forward to the next post from you! Good Luck!! oxox Judy

[delia2]

I’m so glad you have this possibility for HIPEC surgery. And you sound like an amazing mum who is preparing for the worst while fighting for a future with your family. Your determination is on your side and we’re all pushing for you!❤️❤️❤️

[Rlenesue]

Have you already done the chemo? If no tumor has invaded an organ I would think chemo could knock it out. Let us know how you make out

[lorraine71-Australia]

Hi, So glad you are having that second opinion hope it gives you great results Take care Lorraine xx