Hello my friends, Well my oncologist has told me she has no more options and as I'm feeling to weak to go on a trial she has booked me in for palliative care, I do feel down becourse while I was on treatment I felt like I was doing some thing now I'm not on any treatment and my 125 has gone up to 1500.
I've had quite a lot of chemo in the last 4 years and my body is feeling it ,I'm trying to keep bad thoughts out of my head it's hard.
My daughter is my full glass person and want's me to try for the next few weeks to get some strength up and try for a second option, I'll see how I feel then the Prof I won't to see is away till the end of next month.
I am so glad I found this site over 3 years now and in the time you all have been amazing ,many times I've needed someone to talk (correspond) with and you have not let me down, i also remember the lovely ladies who are not with us.
Keep up the good advice and encouragement ladies especially to any one new to our community.
My hope is that a treatment will soon blow the beast to bits. I'm feeling ok and will keep in touch.Take care all Love Lorraine xx💙💙
Oh Lorraine, that is devastating news, my heart goes out to you - a huge hug is winging its way from Coffs Harbour right now (... feel it yet?). I think your daughter is right to continue hoping, a rest and some special care for a few weeks may help to build your physical and mental strength sufficiently to try other treatment options.
Has your oncologist ruled out trying the parp inhibitors, there is one that is now available on the PBS?
love and hugs Dawn xxx
Hi Dawn, Thank you my oncologist shat tried me on ARIMIDEX pro inhibitor it did not help
I'm trying to get my strength up so if there is a treatment for me I will try it.
What is the pro inhibitor you know that is on PBS ?
I hope you are doing ok take care Lorraine xx
Very sorry to read this, Lorraine.
I hope you'll find, as many do, that the palliative team are able to make a real difference to your quality of life. The shingles on top of everything else was really the final straw!
Going for a second opinion is wise, when you're a bit stronger.
PARP inhibitors are completely different from Arimidex.
Not sure which one is prescribable in Oz, but it's probably Olaparib/Lynparza.
xxxxxxx
Thanks Mac I thought Arimidex was a parp inhibitor take care Lorraine xx
So Arimidex is one of the oestrogen inhibitors like Letrozole?
xx
is my understanding, yes.
Gosh, I've never heard of your PARP! But my trip to Oz last year did bring home how the world groupings split up differently, on some fronts at least. My Niraparib was nowhere in site there at that time. Good luck on both fronts with it. x
I'm going pretty well, second scan on the trial coming up in a few weeks, so the proof will be in the pudding (now where did that phrase come from?).
Yes Mac27 is right, it is the Olaparib/Lynparza parp inhibitor that is on the PBS. I'm on a different parp inhibitor called Pamiparib (BGB-290) - a Chinese invention, so hoping it will improve my Mandarin at the same time as curing OC!!!!
You take very good care of yourself and rest up.
Love Dawn