update no More chemo now palliative care ☹

Oh Lorraine, that is devastating news, my heart goes out to you - a huge hug is winging its way from Coffs Harbour right now (... feel it yet?). I think your daughter is right to continue hoping, a rest and some special care for a few weeks may help to build your physical and mental strength sufficiently to try other treatment options.

Has your oncologist ruled out trying the parp inhibitors, there is one that is now available on the PBS?

love and hugs Dawn xxx

That's tough news, Lorraine. I'm so sorry you have to deal with this situation, and I'm afraid for you.

I'm with Dawn though. Recovering some strength if possible (and maybe even getting rid of the shingles) over the next few weeks, then speaking with another prof for a second opinion sounds like a worthwhile goal.

I hope the palliative care nurses or maybe even a nearby hospice can maximize your chance at that break and ensure you're not plagued by shingles or other pain in that time. Instead, you deserve a breather and some comfort to start with. Hugs. Maus

Hi Lorraine , I remember the advice you gave me when I first stumbled across this forum and am feeling totally inadequate to say the right thing to you now . Please rest and recuperate the best you can to enable you to try something else . We hope each day that a new discovery will batter this awful disease we share into submission and I pray that you will continue the fight very soon .Sending a great big hug across the oceans . Julia xx

Hi Lorraine

This is a tough disease and you have endured a lot through your treatments. A break building up your strength will give it a chance to face whatever you decide to do next. All the chemo you have done over the last few years is hard.

Best wishes

Fay

I've got to reply to you, even though I'm in hospital at the moment feeling crap. You, of all the girls, was the one I thought would beat this. Such a fighter and even in the face of such devastating news you only think of others. I feel proud that you are one of my cyber sisters and helped me so much through my year of sh*t. Yes, I'm going to swear today, sod it. . Keep strong my friend and gather your loved ones close. Big love to you, Kryssy xxxxxxxxxxxxx

Hi Lorraine, so sad for you to hear such devastating news, words are just inadequate, I hope that you can recover some strength and are able to go on a trial, my thoughts are with you and your family.

Much love Maggie xx

Lorraine, that is really hard news for you to get your head round, and especially when you’ve been through as much chemo as you have. Your daughter is right though, now is a good time to give yourself the chance to rest and recover your physical reserves and the mental resilience you’ve shown us so wonderfully through all the treatments. Sending love and the warmest hugs Jo 🌺🌼🌸🌻🌹

I am so sad to here this Lorraine, you are a winderful support on here . Hope you can build your strength up and rest for a while .

Sending love and prayers.

Sheila xxx

That really is rubbish news Lorraine but like your daughter and others have said, take the break to recuperate and build up your reserves again then look at second opinions and other options.

This must be so hard for you to get your head around when you’ve been so proactive in trying to beat this beast!

I’m sure once your body is feeling less battered you can take on the challenge again x

Look at Lily Anne, she has had so many trials and tribulations but she’s still here fighting and she will get to see Sarah Millican in November I’m sure! You will be the same x

Sending you the biggest hugs, you’ve been a great support to me and you will continue to be xx

Lots of love and respect for your attitude and bravery

Bev xx

Hello Lorraine so sorry to hear your news, if you take a break from all the treatments tests and hospitals and get your mojo back, then go see your professor next month when you will be fighting fit for a new treatment. In the meantime enjoy everyday laugh live love! I will look forward to hearing all about your adventures and what your next treatment is going to be, keep fighting! Virtual hug coming over to you. Lyn xx

It’s a good idea to take the palliative care in order to get well enough again to have a second opinion and consider further options.

Look after yourself and hope the shingles completely disappears.

I agree with Helen on this. You have had a tough bit of news Lorraine and I am so sorry. But hopefully you can rest a bit, recover a bit and then get more options with a second opinion. Sending you love xx

Hi Lorraine I am so sorry to hear your news, you've had a tough time lately (stating the obv!) I agree with your daughter, maybe take some time to regroup and rebuild your strength and then go for a second opinion. Sending you a big hug. Take Care. Kathy xx

Lorraine,

Just wanted to let you know how valuable and precious all of your support and comments have been on this forum.

Though I don’t post very often I love reading your comments,you write with such warmth.

You’ve had a hell of a time...do hope you feel stronger in time and the palliative team can work their magic.

Best wishes,Clare xx

So sorry to read this - I hope that the palliative care team can help ease any issues you have and help you prepare for whatever might be - it may be thaf once you regain some strength , options become available so always worth seeking a second opinion - thinking of you x

Lovely Lorraine, I’m sorry your oncologist has delivered such devastating news for you but I’m afraid I’m one of those sometimes irritating glass full people and am with your daughter, maybe a rest and then another opinion could be the way forward for you. Of course only you can make this decision and must take stock. Whatever you decide you know we’re all here for you to support and help you in any way we possibly can even if it’s just virtual hugs over the interweb.

Love and hugs winging their way from a damp and chilly U.K. ❤️Xx Jane

So sorry to hear this Lorraine. Such devastating news. I agree with your daughter. Build yourself up a bit and then make a decision. Sending lots of love xx

Hello Lorraine,

Big hugs from the UK! I just want you to get strong again! Your body has been through so much with all the drugs and then shingles too. Your posts are always so kind & thoughtful Lorraine. I wish I could magic things better...please keep in touch & let us know how you are.

Much love,

Linda 🌺🌻🔆🔆🌻🌺

I'm with everyone else (daughter too)---hoping you can get your strength back and consider some other options besides chemo. I am so hopeful there is something that can work well for you while keeping your strength up. Thinking of you Lorraine. oxox Judy

I have been reading these posts since my sister was diagnosed in January and I am grateful for your wise posts and believe like your daughter, regain your strength first. My prayers and hugs from the states to youLorraine. Nancy.

Yes a bitter blow for you after your tremendous resilience in dealing with all the chemo over the past 4 years . Time now to restore yourself and Palliative care will help with your quality of life . Then you can review your options with the new Prof. There is always Hope . We are all behind you .

Love , Mary x

Hi Lorraine,

Don't feel defeated yet. New things come to the surface all the time. There could be anything round the corner. Anything can happen to anyone anytime.

My thoughts are with you and will always be.

Wish you all the best. Love Zena xx

Hi Lorraine, I just wanted to send a big hug and best wishes that you get some rest and regain strength over the next few weeks, then reevaluate options with the new prof. Sending love and support from Ohio.

xx Gina

Lorraine, I can't add much to what has been said. We seem to be echoing your daughter. The fact that the shingles are gone is really good to hear and hopefully it will give your body a chance to build up some strength. Second opinion, a PARP or a clinical trial may also provide some additional help if the chemotherapy has run its course. You have always been so upbeat and supportive to others perhaps its time to turn some of that in your own direction.

Dear, dear Lorraine -- hang out with your loved ones, rest, laugh, and know that women from all over the world are sending loving thoughts your way. You have inspired so many people on this site. I'm sending this message with much love and respect. XXOO

Oh sh___t Lorraine! You are such an inspiration to me as I feel we are traveling similar paths. I'm with your daughter! I know for me that when I'm feeling poorly my mental state follows me down the rabbit hole. I pray that your poor body will rest and recuperate along with a refreshed mind. Love and hugs from Kathy in Seattle.

It’s honestly not so bad on palliative care. No more veins to find, sickness or side effects. The body is amazing and now mine isn’t fighting poisons it’s doing a grand job of fighting the cancer as doesn’t have divided resources.

I know I’m not a shinning example as I do know I’m clinging on for November but I was clinging on for April and June too

I’m not sure how your health system works but do you have a hospice support? They are great for patching you up and sending you home.

Sort out some mini goals that you want to do, make memories and put OC out of your mind. Enjoy today.

Much love

LA xx

Lorraine, I believe you will adjust and will strengthen mentally and physically, because you’ve proven what a strong lady you are going through such a lot of chemo.

Never say never, no one knows what the future holds. Enjoy your ‘you’ time just now, you’ve lots of support here xxx

Sow and you will reap the rewards. All the posts you sent on this forum giving comfort, advice and common sense are coming back to you from all your friends and supporters just when you need it. Get strong, my dear, it'll make you'll feel better again, just as LilyAnn said. Gina xx

Hi Lorraine Sorry to hear this, but hopefully they will try a parb inhibitor for you, your body has been through so much and shingles is awful to deal with even if you don't have cancer to battle with too. Try and repair your body with good nutrition, gentle exercise, I found reflexology brilliant when I was at my lowest during chemotherapy and after getting a bad flu in the middle of it and I also take two shots of juiced wheatgrass every day I avoid sugar and dairy and eat as much raw veg as I can. I do yoga daily. I'm new enough on this I was diagnosed last November aged 35, but I always read your posts and you are very inspirational and strong. Your daughter is right what other way can we look at the glass only as full. Sending you positive energy. xxx Take care Clare

I'm so very sorry to read your sad message, Lorraine. I do hope you'll feel much stronger soon, having a rest from treatment. I can completely understand why your Daughter wants you to try something else when you feel stronger and I hope you will be able to. New treatments are being trialed all the time and maybe there will be something you can face doing. I hope you can get a second opinion. I couldn't reply to your message this morning - I was too upset for you. I hope you can have a calm and peaceful time and feel surrounded by love from your family and friends. I'll be thinking of you and looking to see any messages you Post.

Sending much love and a virtual hug and 💐, Solange 😊

Dear Lorraine,so sad to read your sad news, but hopeful that now no more chemo, your body will be able to repair and help your strength to build up. As I read your history, I see your continuin strength and positivity which as we all know is a massive plus for all of us trying to overcome this foul disease.

Much love, strength and support to you my dear kindred spirit

Jackie O xxxx

So sorry to hear this, Lorraine. But I am actually convinced that time off chemo can be healing, so try to pack in the treats and some time in nature. I get what you are saying about the importance of feeling you are doing something with treatment. Maybe you can look at this time off in the same way - nurturing and healing the body? On the subject of palliative care, my cousin has just transferred to this and found it a much more positive experience than she expected. You have the possibility of a second opinion, so I think you are keeping all the doors open. Wishing you much strength and courage on this tough old journey. xx

ps I don't get hung up about my CA125 - prior to starting the Rotterdam I didn't know what it was and it didn't make any difference. Later I found it was 18000 and I had been walking about doing stuff and not feeling too bad!

Sending lots of hugs🌻🌻🌻

Lorraine words won’t express how I feel reading your post, I hope the palliative team help you build up your strength and able to fight this hideous disease again.

Sending you virtual hugs.

Ellsey xx

Hi Lorraine,

Sorry to hear your crappy news, however, just wanted to reply to say that my mum had 8 lines of chemo in as many years, and was told there was nothing left available for her apart from a trial, so she hot footed it to the chrystie, sadly half way through it was clear it hadnt worked as she was so weak, her oncologist sent her home with a long suply of steroids in the hope they would at the very least make her more comfortable and give her a tad longer, they did, within 2 days she was walking a park with my 2 and her dogs (the park takes at least an hour for one route!!!)

Months down the line she was fit enough to have another line of chemo.....

Maybe you could ask for some to help get you ‘up and rubning’?

Lots of love to you xxx

Dear Lorraine I’ve just joined this sight and so am responding as one starting this fight and new to this sight . I’m so sorry to hear your news. Everybody has given all the good advice. All I can offer is my very best wishes for you to keep positive, and be at peace in this time of respite from the drugs before the next trial. I loved LillyAnn’s advice. Sending you healing thoughts and love from Scotland xx

Hi Lorraine so sorry to read your news. It’s something we all dread.

Sending you lots of hugs 🤗🤗🤗 xxx

Dear Lorraine am so sorry to hear your news hopng that pallitive care will give you some pain free time so you can do some things that you want to do and also help to get some strength back you are in my thoughts sending lots of love and hugs Catherinexox

Hi Lorraine, I have no words or advice to make you feel better other than what your darling daughter and our Teal sisters have already said.

Savour each day, take time to smell the roses and concentrate on fighting with all your strength, heart and soul.

Sending you my very best wishes that things turn around for you.

Joy 🤞🏻🤞🏻💕🍀

Lorraine,

You are the one most highly looked up to women I know I this site. You have such wisdom you have shared to others and oh so strong! I am going along with your daughter let’s see where you are in a month with rest, hopefully you will be strong enough to try something else. You are a wonderful person who has always replied, one of the first I must add, to me when I posted. Your wisdom, strength and knowledge is at the top. I am sending my love and prayers to you Lorraine. You get strong! ❤️ Peggy xx

Hi Lorraine, really sorry to hear this but like your daughter has said, maybe time to pause and get your strength back.

You are such a lovely person, your warmth shines through and you're always here to give love, advice and support for everyone. We're all here for you Lorraine.

A big cwtch (cuddle) from Wales.

Michelle ❤️Xxxxxxxx

Hi Lorraine. I am still adjusting to finding myself in the world of cancer. When I think I am sinking into self pity and the black hole of fear I look on this site and the posts from people like you give me comfort, hope and knowledge. Just wanted you to know how much you have helped me and to return some positive thoughts to you. Xx

Dear Lorraine,

You've fought this for the past four years and it's a good idea to give your body a rest to recover from all those successive chemo sessions and having to battle the symptoms of shingles on top of it all. God willing, with the help of your consultant other options might present themselves.

Your daughter is right to keep you looking on the positive side of things. Take care Lorraine..we're thinking of you. Xxx

Maryanne

I'm so sorry i woke you up Lorraine... didn't think of the time difference how silly of me. Yes, fitful sleeping is something we all experience and it can be quite annoying. Will let you catch a few winks now Lorraine. Keep up the gpod fight and sweet dreams. Xxxx

Maryanne

Hi Lorraine,

I’m sorry it has taken me a few days to reply to you, but I have been having a few challenges on my side.

I’m really sorry that your onc can’t suggest anything else at the moment. Hopefully as others have said, once you have had some time to regroup and get your head straight, you will be able to consider what next (if anything, because that’s fine too).

I have found the palliative care team in hospital to be far more useful than the actual medical team. One of the most junior doctors who has seen me, has actually been the best person and has helped my symptoms enormously. I look forward to her visits each day. I hope you are able to get some good help like that too.

Sending you all my love over the ether.

Vicki xxx

Hi Lorraine. I have only just read your post and, like all my teal sisters, I am sending you love and gentle hugs, hoping you will feel stronger soon. There is amazing global support winging it’s way to you because we all care. (I’m in North Yorkshire, England). Love & 🌸🌼 Carolyn x

I'm so sorry to hear this news Lorraine. My wish is that you are well taken care of with palliative care and that you can build up strength as the others have said. It is still possible to gain some strength I hope. Your daughter is a great warrior along your side. Take all the help and support you need. Big hug 🌼

Hi Lorraine,

I have not written on this site before but I have been following all you lovely ladies for several months. And I have read much of what you have written over time and you have always been an inspiration to me. So firstly, thank you. Then I see just how many replies you have had. 100 !! Which must mean you've been a help and an inspiration to loads of people in the same dreadful situation. I hope you are feeling the strength and thoughts we are all sending you from all over the world!

I really hope that after the palliative care you will feel much better and stronger and able to resume normal life again and retain your great sense of humour!

Love Guri.

Hi huni! Gather your strength and rest , sending big hugs & 🙏 god bless you and all our ladies 😘🤪😘

Oh Lorraine. I just saw your post. I am so sorry to hear this and when you feel a bit stronger please talk to someone about the possibility of parp inhibitors or anything else to see if they may help. I am also not sure if they are on PBS in Oz unless on a clinical trail but will ask when I next see my oncologist, Monday week.

Also can you get some home care with nurses visiting until the 9th and some help at home? Sending much love and big hugs from Sydney.

Lorraine I’m sorry that you’ve had this news. Let the palliative team care for you and help you gain your strength. Do go for that second opinion and at least this way you will know in your heart that you left no stone unturned and I’m sure your daughter will feel comforted by this too.

I’m starting 5th line this week and those options are getting very limited but I’m giving this my best shot. I’m like you Lorraine, one of the oldies on the site. I have been on this road for 4 and half years with a lot of treatment but I’ve also had some amazing times. I want to see my youngest daughter become an adult. That would make me so happy. It’s 3 years away but only God knows the beginning and the end and nothing is impossible. That’s the one thing that convinced me to start chemo again when I had only finished a month ago. Will say a prayer for healing and peace in your head and heart for you this evening. Hugs xox

Thank you Lorraine. Are you Brca ? I am and have had 2 different parp inhibitors - Rucaparib and Olaparib. They were much easier to tolerate than chemo.

There’s also a girl on Facebook called Fi Munro. She’s non Brca and on a trial using 3 drugs. Would be worth looking at all this before you meet the Prof for a second opinion and at least you’re prepared xo

Keep reading your on going posts and finding it difficult to reply because I also feel I am coming to a cross roads of whether to carry on or accept that further treatment is not going to be good for my body.

I hope you can continue to post for a lot longer yet.

Your body might surprise you ( like Lily Ann ) and go into relief and recovery mode now more chemo.... well, maybe not for a while yet anyway.

All the best whatever happens

JAnet x 🌈

Sending love ❤️❤️❤️

I too will not be having more chemo at present. My choice but guessing Oncologist would agree. Body just too weak. Not ruled it out for when I can build up some strength.

Thoughts are with you xxx

Just wanted to send love courage and strength to you. Also a second wind once you can get your strength back... I love that you have a daughter who is glass full. And courage to your other daughter...❤️ Much love and keep us posted.

Xxxxxx

Hugs Lorraine xx my mum was also told in the last week that chemo is no longer good for her and has been referred to palliative as she won’t stop bleeding from tumours in her vaginal vault, my heart just breaks.. I feel lost, I feel empathy for you and your daughters. Mum has also fought this for four years with countless chemo, radio, surgeries.. we are also in NSW.. if your daughter would like to meet or just chat, I am happy to chat.. take care and lots of hugs xxxx

So sorry to hear your news, still try to keep positive. Lots of love and kind thoughts Anthea

Sending love, hugs and positive thoughts from Canada. Xo

Dear Lorraine

I read your message while I was in Lourdes so I'm sorry it has taken this long to reply. I was really sad to hear that they are not offering any treatment for now. I did the only thing I could do for you. I prayed really hard at the Grotto and lit a big candle for you and all the other lovely ladies. I hope that very soon they can come up with an alternative treatment. I can see you are not ready to give up and stil have hope. You are still being your usual helpful self on the website despite everything. Well done. Take care.

X X X

💚💕

I am sorry to respond so late Lorraine, Hurricane Florence slowed me down and this was the first message I saw on line. I am so sad about your news. I do hope you can rest and recoup because there is always hope...no matter what. It must be so hard to wrap your brain around stop after 4yrs of fighting this insidious disease. I send you love and support from North Carolina. Valerie xx

Well there is always that great physician who walked the earth 2,000 years ago. He wasn't just alive then, he is now, I know because I came face to face with him about twelve years ago - yes really! For five days I was here on earth and yet with him. Its a long story but one that changed my life for ever, it couldn't not change it really. Why me? Heaven only knows but there it is, it happened. I am just a very ordinary house wife and was a bit reluctant to post this but I think he wanted me to, so I have. If its not for you please ignore it. I just want you to know that my love and prayers and best wishes are with you.

Love and Blessings - xxxxxx

Hi dear lorraine

I dont write often but do follow all the posts and yours have always been amazing so sorry for your end of road options but get strength and try second opinion even my mom is not responding at all to chemo tumors have grown in size and we have also been suggested palliative care its heartbreaking especially like you she feels worse with no active treatment take care may god give us all strength to fight and endure this monster like Australia we dont have a hospice care and its either home or hospital

Love and prayers from india

So sorry to read this Lorraine, but like all the other ladies in hoping you feel much better, and manage to get a second opinion...you've been such a warm presence on this site and I expect most of us aren't ready to see you go!! Lots of well wishes from Leipzig, Christina xxxxx

Hi Christina, thank you for your reply,I am feeling a bit better and will go for a second opinion next week , he may say the same thing as my oncologist but I need to try .

I've been on this site now for 4 years and corresponded with some amazing ladies the advice and encouragement has been so important in helping me.

I hope your ok you take care of yourself Lorraine xx💙💙

Please stay positive and that's the only way to beat the terrible disease. I am a firm believer of immunology because God has equipped our bodies with very strong self defense mechanism. The Resurrection power in Christ also is in our bodies and I pray that you stay positive and faithful and may the Lord heal you.