Update on my Carbplatin and Caelyx treatment

[lorraine71-Australia]

Hi Ladies,I have had some good news to day my 125 was1300 now after two treatments of Carbplatin and Caelyx and it is now 780 still high, but will have more treatment Monday then a ct scan and my oncologist will look at continuing.

It would be nice to have a break as I feel like I've been on chemo for the last 2 1/2 years. I don't drink so I'll have some chocolate instead. Cheers and my best wishes to you all Lorraine 💙💙

[GoldenGourd]

That is very encouraging news Lorraine! I really hope you can have a chemo holiday soon. Enjoy the chocolate!!!

Netti xx

[Purple-iris]

Great news . ' Hang on in there ' and enjoy the chocolate 👍Kim 💜

[lorraine71-Australia in reply to Purple-iris]

Hi Kim, Yes I was please it is still 760 but going the right way.

Loved your photo on your last post well done keep it up...Cheers Lorraine 💙

[Cropcrop]

It's going in the right direction so that's good, hopefully it will keep this trend up and you can take a break soon. Chocolate is my vice too, I can't drink either 😥 Enjoy the treat and keep up the good work ❤️Xx jane

[lorraine71-Australia in reply to Cropcrop]

Hi Jane, Thank you for your best wishes and I hope all stays well with you.

Cheers Lorraine..💙

[Yoshbosh]

Sounds good, Lorraine! Fingers crossed for you 😘

[lorraine71-Australia in reply to Yoshbosh]

Thank you, I feel a did better after my results I have more chemo on Monday so hope the breast gets more kick in the butt.

Sorry to hear that you may be on treatment again it is a roller coaster but I sure with your team and your own sprite you will fight this beast.

Best wishes Lorraine..💙💙

[CallmeMum]

Hi lovely

I was thinking about you the other day. How are you finding Carbo/Caelyx?

My special person finds mouth ulcers the worst with this treatment, like yourself her CA125 has gone right down but they're doing her CT scan at the end of treatment as they're using her CA125 as a guide considering it's gone down so far, also they're gonna put her on Niraparib as her Onc has said she's responded really well to Carbo and it's been proven to work for all not just those that are BRACA positive so it might be worth chatting to your Onc to see if they can do that for you? I do on what you mean about the 2.5yrs of treatment a nice long break would be fantastic 😊♥️💋 Xxx

[couls in reply to CallmeMum]

Hi, CallmeMum, are you in the U.K. ? As I didn't think Niroparib was available yet over here, unless on a trial. Is it a trial that that the oncologist is speaking about ? If so do you know the name of the trial?

Thanks Val. X

[CallmeMum in reply to couls]

Hi lovely yes we're in the UK I don't know the name of the trial and she didn't say it was a trial all the Onc said was it needs to start within 3 months of finishing chemo and can be issued under certain circumstances she was quite vague generally always is but as my special person said anything is better than nothing it would be worth asking your Onc about it as I said to her about PARP inhibitors for people that are BRACA negative and that's what she suggested xxx

[couls in reply to CallmeMum]

Hi, thanks. It's good to know what might be available for us.

Take care Val. X

[lorraine71-Australia in reply to CallmeMum]

HI Callmemum. Thank you glad your special person is doing well on carbopltin and caelyx, Monday will be my 3rd treatment and I'm finding it easy no side affects just a little sick same days and I'm having trouble with my teeth some are lose and I have lost a filling this I think is from all the chemo.

I had more side affects when I was on single Caelyx.

I said to my husband the other day soon I'll be hairless ,toothless and over weight plus two bad knees, I had one replaced last year while on break from chemo also have cancer BUT I'M STILL HERE.

Niraparib sound interesting I will talk to my oncologist about it next time I'm in.

Please give my best wishes to your lovely special person and I'm sure she is also lucky to have a special person..Cheers Lorraine💙💙

[dryden1]

Hi Lorraine, Great news and I hope the downward trend continues also hope you are having minimum side effects I am having my 4th dose of Carboplatin and caelyx next Wed just found out my .ca 125 is 11!!!!!!

[lorraine71-Australia in reply to dryden1]

Hi Dryden ,nice to hear from you, I'm doing well on this treatment minimal side effects, I had more when I was on single Caelyx Monday will be my 3rd one .

Great news that your 125 is 11 I hope the rest of your treatment kick the breast well and truly in the butt. Cheers and best wishes Lorraine..💜💜

[minard]

That's great to hear, Lorraine! So glad it's working for you x

[lorraine71-Australia in reply to minard]

Hi Minard, Thank you for your best wishes, yes so far so good.

How are you, are, you still on watch and wait?.

Best wishes and hope you are ok..Lorraine 💙💙

[Spencer2016]

Hi Lorraine- sounds like this treatment is kicking the cancer's ass! Love to see that!! 💥🤛🏻

Keep going! You're doing it!!! 💪🏻🙏🏻👊🏻👍🏻

Best,

Anne

[lorraine71-Australia in reply to Spencer2016]

Ann. Thank you for your reply, I have my 3 treatment Monday so yes hope it does kick the beast in the ass and I also like to read post where our lovely ladies winning the battle and and a battle it is.

How are you ? I know you are worried about your 125 but as you know it still is in the normal range, try not to worry, hard I know but the rise can be from so many other reasons. Sending you my best wishes and a BIG hug from a cold down under Lorraine.. 💙💙

[antheamary]

What good news to hear your ca125 coming down. Great boost. Encouraging for the rest of us.

[lorraine71-Australia in reply to antheamary]

Hi,thank you for your reply, yes I like to hear about treatments that are helping I know that we are all different but we can only keep on fighting and knowing that this beast can be attacked successfully helps.

Best wishes and cheers from a cold down under Lorraine.....💜💜