Thanks everyone

[ZenaJ]

Thank you all for being there. Do you know, not one of my family have asked how my results went. I don't think they mean anything by it. They're so wrapped up in their own lives and it's been a long while for me now they probably just think I must be all right. Luckily, I am.

[Hidden]

family and friends tend not to ask unless you are in treatment so I have discovered

[Caroles1]

Hi Love,

Well you are all right now aren’t you? I know how you feel, I tell not to say I am going, even though I am getting my self up the wall (check and bloods Monday) 😬

No one knows like we do, but amazing your good news and long may it continue..........they really don’t know what a big deal it is to us xxxxxx

[ZenaJ in reply to Caroles1]

Thank Carole, I know they'd all be there for me if I had bad news. xx

[Seasun36-uk]

So pleased for you 🥂🎉🔆🥂🎉🔆

[Yoshbosh]

To be honest Zena, they probably don’t realise/understand what a big deal it is. They probably thought you were ‘cured’ when you reached NED, and don’t appreciate how stressful the review appointments are. To them it’s not a big deal, just a routine thing. (Unless they do know all of this and can appreciate how important it is, in which case shame on them for not showing more interest).

Vicki xx

[ZenaJ in reply to Yoshbosh]

I don't think it crosses their minds, Vicki. I guess I should just tell them without waiting to be asked. It's good they're not worrying about it anyway. There's enough worry. I know the support would be there if I needed it. xxx

[babyboy1]

Oh Zena, I think that after a while they tend to get into the groove where they are once again taking it for granted that you're going ok and tend to let their own lives take over! However, dont think for one minute that they are not there for you! They're your family! Make a point if telling them how you got on!xxxxDawn!🌺😀

[ZenaJ in reply to babyboy1]

Agreed. In fact I've just said as much answering Vicki. I don't know why I posted really I know they're there for me. I should be grateful they're not worrying. xx

[Suzanne333]

Oh Zena.

I know what you mean. They won’t mean anything by it. I think friends and family just don’t fully understand. It’s always with us. Always an anxiety and always will be. Even if everything is ok.

I’m so glad you’re doing ok. Xxxxx

[lesleysage]

I agree with all that's been shared too; "No news is good news" after the first couple of steady CA125s for most, I found. But, should it rear its ugly head again, am sure they'd be by your side in a flash. Warm wishes, L x

[ZenaJ in reply to lesleysage]

I think you're quite right. They would be. Thank you.xx

[Kryssy]

I'd say the same. My boys always phone me the evening of treatment or checks but we are only a year down the line. When I got the "stable" in January the calls were less frequent. Sadly it wasn't a long stable so we are back to our regular, "How was it? Are you OK? What did the doctor say?", calls. I'd rather be talking about something else of course. Your family are not insensitive, they just don't understand how important your checks are to you. They expect good news so they are content.

I'm thrilled that you are so well but feel guilty that I didn't respond to your CA125 post. I was wrapped up in my own shi*t at the time. Just goes to show that even your sisters here can be off the radar sometimes. Sorry. xxxxxxxxxxxxxxxxxx

[ZenaJ in reply to Kryssy]

Don't be daft, Kryssy, I wouldn't expect you to reply when you're feeling so bad. I wish I could help you. Sometimes, I don't reply to posts because I just can't find the right words and don't want to make anyone feel worse.

Thanks for your good wishes and all the very best to you. Zena xxx

[Katiebairdie]

I have to agree with you. My children don’t remember the fact that I’ve had chemo never mind the three monthly appointments. However I know they do really care.

On the other side I get fed up with acquaintances only seeing me as someone with cancer and always asking for the latest news. You know the type, with their head to the side.

Pleased for you and long may it last.

Kathy x

[ZenaJ in reply to Katiebairdie]

Thanks Kathy. You've brought to mind when I was on chemo, I saw no end of people I'd hadn't seen for ages. I could have done without a lot of the visits but knew they were just being kind. I haven't seen most of them since. It was like they were coming for their last goodbye. It's a bit like when people send flowers and come to your funeral but can't be bothered with you when you're still here. I guess we're all guilty of that one.

Best wishes, Zena x

[Di16]

I'm on hormone tablets & 3 monthly checks. I know my daughters care, but one is more likely to remember roughly when the next check is due, & ask, than the other. But with the one who doesn't often ask now, if I don't answer my phone, or she doesn't see me in church on a Sunday morning, she's quick to get concerned & ask if I'm ok. Di

[ZenaJ in reply to Di16]

They're there for us really. I know it. xx

[Cropcrop]

I always tell everybody I can think of when I’ve had an appointment, keeps them on their toes and jogs their memories. We all know how stressful these appointments are and it’s only fair to share 😂, seriously though, I think they need to know, it may have gone away for them but it never really leaves us does it?

Keep on being well lovely ❤️Xx Jane

[ZenaJ in reply to Cropcrop]

Thanks Jane. You're right it'll never go away for us. I don't seem to be able to let it. Every ache and pain now I think is a new cancer. I was never like that. Still it keeps my doctor employed.

You take care, Zena xx

[Luchie]

Hi Zena, so nice to see you are ok. Our family & friends probably thinks that when we're NED that we are cured! Do you have the high grade serous OC? Take care. Xxxx

[ZenaJ]

Thank you. I'm not sure what I had. I just know it was grade 3C. It's only coming on this site that I realised how different everything is. I do carry the BRCA gene 2. I'm waiting to see if I'm the only one in my family to have it. I'm hoping I am. I don't even know what my original CA125 was. I feel really ignorant sometimes but I didn't know what questions to ask. I thought I was on top of it.

I hope you are doing well. Best wishes, Zena xx

[rppizio]

I went to Dr back on the 23rd. My number jumped to 49.7 15 pts in 3 months. No one asked me either. I brought it up about missing work to go to Appointment. My family has the attitude that until my number gets higher than 271 like the first time they are not worried about it. I was alive when it was that high so nothing to worry about at a mere 49.7. If they only knew how scared I was.

[ZenaJ in reply to rppizio]

They really don't understand do they? My GP told me that anything up to 35 is normal. I didn't know that till last week. I feel so dense sometimes. xxx