I had a ct scanof abdomen and pelvic ct scan with contrast because of a
Major op on a hernia scan came back i had a cyst on my ovary was sent straight for a transvignal scan and c125 as i am 51 and postmenopausal. Never had the results bit got a letter yesterday saying i had a appointment with a gynacologist oncologist now im worried sick does this mean a have ovc ? Any replies would be much appreciated
Hi and welcome to this very supportive group x
I think the fact you are being seen by a gynae oncologist is a positive one as they really are the best to deal with anything suspicious
It sounds like they are taking your findings seriously but until you have surgery or a biopsy they can’t generally diagnose 100% but gynae oncologists are the experts and have a good idea and you’re in the best hands believe me x
It’s a really scary and worrying time for you but please don’t google things as that will terrify you and those statistics are way out of date!
The not knowing and waiting for results and appointments is the worse part of this journey, once you know what your dealing with and the plan your anxiety will lessen a little and this forum is great for support and advise whatever time of night and day you need someone to chat too xx
When is your appointment?
Big hugs
Bev x
Hi bev thanks for the reply my appointment is a week on thursday i am so scared i am not going to see my first grandchild in December and thanks so much its nice to know there is people here for me
Thanks again bev x
I know exactly how you’re feeling and course you will see your grandchild in December!!! You’ve got this believe me and positive thinking goes a long way!
I was diagnosed last July and I’m still here to tell the tale, it’s been a bumpy old ride but I’ve also had some fab times with my family and friends!
I’m back on treatment but working full time and feel well
It’s all terrifying and new to you at the moment but take a breath your not dealing with any facts yet so your imagination is giving you worse case scenarios it does to all of us! Try and keep busy until your appointment and don’t beat yourself up for having wobbles it’s allowed and to be expected!
Make sure you write down any questions you might have and take someone to the appointment who can make notes for you as you’ll forget things afterwards believe me xx
Big huge hugs xx
Sorry i thoughti had replied back to you bev . I am just learning lol you have really made me feel welcome and this is the first meal i have ate in days and its thanks to you i dont even know you personally but what i do know is you seem i lovley lady who takes time to talk to people .good for you going back to work and i wish you all the luck in the world thank you so so much bev big hugs to you xx
You’re welcome any time and let us know how you get on or if you just want a chat about anything xx
I so sympathise with you. Take heart, though. Eleven years ago I was diagnosed with Ov Ca and didn't think I would see my youngest son'sand his wife's first child born, due four months later. Not only did I see their lovely first baby girl born but have seen another baby granddaughter born and three more grandsons, making eleven altogether and two great-grandsons. Keeping my fingers crossed.
Love Solange 😊
Thankyou Solange and congratulations on your grandchildren and great grand children . I feel as though i am going mad at the moment had a ct scan of abdomen and pelvis reguarding a recent op i had wasnt expecting them to say they had found a small cyst . Had a c125 done and a transvignal scan and got a urgent referral to see a gynacologist oncologist oncologist thursday coming which will be 2 weeks and 1 day since i had the transvignal scan. I am so so scared i have even thought about not going to my appointment i knew that sounds stupid because it is but i am petrified i dont get to see my first grandchild thanks so much for your reply 😊
Firstly hello and welcome - as scary as it all is ( and I remember it well ) no one can give you a definitive answer on what the cyst maybe until it is removed and biopsied - it is actually a good thing that you are being referred to a gynae oncologist as they are surgical experts in dealing with such things unlike general gynaecologists - they will discuss with you the findings do far, perform a pelvic examination and decide what if any further tests such as cr scan are needed- easy to say don’t worry but try and fill in time doing things to distract you and take mind off it all - worrying won’t change anything - also stay off google - lot of scary stuff out there which won’t help x
Thanks so much for your reply coldethl ive googled upon googled and its so scary i just dont know why i wasnt told what they had found on the transvignal scan or how high my c125 was . Just a letter to see a gynacologist oncologist oncologist which makes me think oh god im dying of cancer first time a have ate something was after bev replied to my post . Also would like to thank you so much for your reply. Have you been threw a similar experience ? X
I gad an emergency ultrasound in summer of 2016 which threw up a 15cm mass on one ovary - was told various things by the house officer on gynae ward then received a letter for a ct scan in post about ten days later - a few days after that for a letter from local gynae which said nothing then day before scab I got phone call from specialist gynae nurse - I was so scared I made husband talk to her - I still think it was out of orde to ring up out of blue and start talking cancer on phone - I’m not stupid and knew it was a possibility but feel a face to face discussion more appropriate - I was told my Ca125 a bit high but after scan I was called as I had blood clots in lungs and referred to gynae onc at teaching hospital - until they perform surgery they can’t say much tbh - I was told I was stage 1 but biopsies showed I had microscopic cells elsewhere so upstaged to 3 - it is scary and ovarian c not for the best prognosis but I’ve found with time that I’ve made some sort of peace with it all and as bev says, there’s still a lot of living to be done even if it is what you fear - wishing you well - try and eat as you need to be fit and well for Alan of this - oh the irony xxx
Your doctor is being proactive which is good because most may not pick up on OC, I think take it day by day week by week until you have the full picture and see the gynae oncologist. It is better to be picked up rather than left there to get worse, I assure you will see your grandson in December. If the worst comes to the worst, OC is a manageable disease so you may have surgery followed by chemotherapy. This should halt any progession that is if you need this. Don't make assumptions until you have information, all the best
Thanks so much for your reply i really do appreciate it suzuki and i didnt mean to pry just i am curious what others are going threw . I am so sorry what you had to go threw on the telephone and it is a scary time i hope you are doing well now and good luck with all your treatment much thanks form a grateful trace xx
Well they didn't like the look of my ultrasound scan and I was seen by the gynaecologist oncologist within 3 days - so they are not in that much of a rush. I was told that they couldn't tell until they operate but they wete suspicious.
Thanks for the reply neona wow i had my transvignal scan a week ago and i still dont see the oncologist till a week tomorrow and i heard they cant tell till there operate hope everything as gone well for you
No, but they want to figure out what type of cyst is on ovary. Prayers you'll be ok❤Liz
I thought they might of know as a had a transvignal scan last wednesday i got my appointment threw the post saying i was seeing a gynacologist oncologist so i freaked out thing it is cancer . Have you been threw a similar experience i lizchips ? And thankyou so much for your reply ❤
I actually was misdiagnosed 6 times by a GP, then passed out and went to the ER, the doc found a two lb mass, I was crazy tired all the time prior. I have stage 3c clear cell ovarian cancer. Diagnosed in 2014, cancer free to date. You will be ok. Obgyn onc is in case you need surgery. I know your scared everyone is of the unknown, you'll be ok either way. 5 cm is small sounds like they found it early either way. Mine was 8cm x 10cm x20cm. Engulfed all femal organs appendix and part of the colon. I'm still here, ❤Liz
So glad you are free to date liz that great news i am so scared as i have a first grandchild comingbin december was really looking forward to him or her arriving now i cant think straight thinking its the end for me . I hadnt ate nothing till yesterday after bev repiled to my post which i am so grateful to her and you all 💖
You'll be ok. Congratulations on the upcoming grandchild. Don't panic. Think positive, it has a lot to do with the outcome. I was real bad but staying positive, I'm ok. You will be ok. ❤
All your fears are so normal yet so hard to take, aren't they? It's the waiting that is so hard too. But it does sound like they are being cautious, careful and that they have your best interest in mind. I know you have heard it here but do not go to Mr. Google! I did and felt as you do. Most articles are outdated anyway and you don't even know if you have anything yet! In this forum--on the upper right of your page is spot that says "Search My Ovacome" and you can search for answers to things you would otherwise google. Information that is current and helpful. Wishing you a speedy week till your appointment! Bring someone with you to listen as you may not remember everything they tell you. Hope you will keep us posted. Hugs, Judy
Hi judy thanks for your reply and yes my fears are really hard to take in at the moment ive been so terrified had myself dead and buried with Google but since finding this my overcome yesterday and chatting to people in the same boat as made me feel alittle less anxious. Are you going threw the same judy ? And thanks so much for the reply i will keep everyone posted
From a much grafeful trace
I had a scan on Monday and results tomorrow. So this week has been hard--the waiting for me never gets easier. I find it hard to breath normally when I wake up tomorrow until the oncologist walks in to speak with me! So I completely understand!
Good luck for tomorrow judy you will be in my prayers tonight for good news i know how you feel i had my scan last wednesday and ive heard nothing other than to see a gynacologist oncologist the 12th of this month good luck judy please keep me posted if you would and thanks again for your replies ❤
Hi, Trossyann. Welcome to this wonderful group. Of course you will see your grandchild!
Just to give you something to compare yourself to...in 2015 I had a 10cm tumour (ovaries gone wild) which burst. I had no idea what that meant except that I was loaded with that bad liquid. Surgery and 6 rounds of Chemo. My granddaughter was born in 2017.
Staying ahead of any medical situation is key. Sounds to me like you are indeed following the right path and are in great hands. Try to just stay busy. I know it's hard to shake this, but, you will. Good luck and let us know how it goes. This is a wonderful and supportive group!
XOX
Marisa
Hi mptelesca
Oh wow you have had it rough and congratulations on your granddaughter so pleased to have found this group of very nice a caring people . I had a scan late may after a operation i had i was told last month i had a cyst on ovary my surgeon said no obvious cancers found i was sent for a c125 blood text and transvignal scan which i had over a week ago then i was sent a letter from my hospital with a appointment with a gynacologist oncologist which freaked me out . But felt loads better after finding this group last night and i lady called bev and others give me hope even if i did have ovc and i ate my first meal yesterday as hadnt ate in a few days . Now today i get a letter saying a need to see just a gynacologist so i rang up she said letters where slightly different could be 2 different things but to attend next thursdays as it was put in as urgent so im panicking again thinking will i get to see my grand baby in December . Thanks so so much for your relpy
PS...my CA125 was 3500 pre-surgery!
First of all....you WILL see your grand child not only born, but, grow up!
Many Drs are so great at what they do and that's why we place our lives in their hands.
When I originally had gone to the radiologist in 2015 (thinking I was having digestive issues)...the radiologist came crashing through the dressing room in a panic. I thought it was a joke. She kept pacing and babbling that I had a HUGE tumour which broke open and I am in danger! I am not even exaggerating! Horrible experience. After that it was a few days of making appointments and following the due process until I made it to Yale. The initial few days/weeks can be very overwhelming and, fortunately, there are people who will just guide you through as you feel like you are floating. Such a rush of contradicting emotions. The best thing anyone told me to do was to remember to breathe, exhale and then busy myself. At times I thought I would go insane with the thoughts rushing through my head. It's not ourselves we worry about so much, but, our families. We will all get through this because we are strong and have wonderful people to fall back on.
Sending positive energy, thoughts and love,
Marisa
Thankyou so much for your reply my head is in over drive at the moment. Wow sounds really scary what you have been threw and so glad you are here to tell the tale did you have ovc ? Iam so scared with them saying it is urgent but i thank you for giving me some hope and positively . Im usually a strong person but at this moment in time i feel so weak thanks again for you lovley words its much appreciated.
Feeling im not alone love Tracey
Tracey, you will feel so much better once your head is able to release some of the fears that hit us initially. You poor thing. I know EXACTLY how you feel. I had so much trouble telling my family simply because I was so panic stricken and didn't want to get them to get crazy and sad. We mothers should be immune to this sort of thing.
I was always the strong one and it was so darn hard for me to allow others to help me and absorb my pain.
In the medical world, everything is urgent just because they want to get ahead of everything they can do for a person. I found myself hanging on every word and how it was uttered. I watched body language, eye contact, etc. I always prided myself on being able to "feel" the person speaking to me. I eventually stopped trying to figure that part of it since I don't truly know the behavior of the drs/nurses on a regular basis. Most of them are so professional and aware of their own behaviors and how it can translate toward a patient.
Just sit back let everyone do the driving. You will feel so much better once you get more information.
Ok...that was a long winded response to your question as to whether I have OVC. This is going to sound stupid, but, I seriously don't know/believe I actually have it. Of course I did, but, after surgery, 6 sessions of chemo, recurrence (tiny) in January I want to believe I don't have it. I can get into more detail for you if you want, but, for right now...it's important that you know you will be fine. I mean it. You will. Today's medicines and practices are extreme breakthroughs compared to what existed just 10 yrs. ago. Don't make the mistake I made to go online to research. Most of the information on OC is 5+ years old. It will only scare the crap out of you. Everyone is different.
Love,
marisa
Aww i am lost for words what you have been threw and you have come out a strong person i was always the strong one in my family so i feel awful having to tell all my family this news especially my two sons and especially with my eldest having his first baby and me with this news its awful . Thankyou you so so much for all your messages i cant express how coming on here as helped me with all the lovley messages of support i really do appreciate you and everyone's replies
Thankyou from a grateful trace x
Hi hun firstly hugs.
I am 55 and I was diagnosed this year in fact March this year. I have just had my 4th chemo and my recent ct scan is quite positive. EXACTLY like you i wondered if I'd see his year out and can honestly say I was terrified. I was told to wait for biopsys and scan results before i started to make assumptions but my mind wouldnt do that. i thought I'd never fell able to laugh again. would contacting your gp for answers help? so you have some information. You can live with whatever is thrown at you honest hun. talking and crying helped me so if you ever need to talk i'm here. They say nurses make the worst patients and i can vouch for that as i am
hugs again
mandy xxxxxxxxxxxxxxxxxxxxxxxxx
Hi mandy
Thanks so much for your reply and can i say i am the same as you were ive cryed a river . I had a major surgery in January on a hernia was a big op and i had a scan the end of may as i had abit of swelling was called in to see my surgeon who said hernia was holding in place and then he hit me with we found a cyst on your ovary my world came crumbling down i was sent for a transvignal scan scan and c125 blood test and the next a heard was a letter said i was booked in to see a gynacologist oncologist and that as freaked me right on i am scared to ask any questions at the moment mandy till i go next thursday with my partner . All i could think is i am not going to see my first grandchild in December however since coming on here it as give me hope . The messages of support is unbelievable i cant thank everyone enough . Can i say i am so pleased to hear your scan results are positive. I was told last monththere was no obvious cancers on ct scan of abdomen and pelvis but i really don't know what as been found on transvignal scan all they would say is the cyst was 5cm i didnt know if there was any nasties there . All i want is to see my first grandchild ive waited so long for it to happen i am 51 which these days is old for a grandmother my son us 31 whos baby it is lol . Thanks again mandy i really appreciate your message and good luck from me . Ps i then got a letter for the week after next to see a gynacologist when i rang the booking office she said it might be for a different thing she wasnt sure but said the the one to see the gynecolist oncologist was the urgent one . Thanks again love tracey xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
i have mts in my peritoneum and omentum i have 10cm cysts on both ovaries and i was 51when my grandson was born lol so we really do have a lot in common i ama nurse so knew too much i wasa chemotherapy nurse too never thought id cope but i have and ive found strength let me know how you get on are you still working? i worked the day beforemy first chemo POSITIVE THOUGHTS oh and big hugs
#Mandy xxx
Hi mandy
Thanks for the reply and can i say how nice it to hear from a nurse aswell and we do have alot in common mind my grandchild isnt due till December and i will be 52 i am so scared i am not going to see him or her . And can i just say how i admire you still working i havent worked for a year and half due to a hernia waited a year for my op and just had the op in January this year now this only had the scan for that in late may to be told in june i had the cyst i had the transvignal scan and c125 blood test done and i had a letter to say i had a appointment with a gynacologist oncologist which freaked me right out . Now i got another letter to see a gynacologist when i rang the booking office she said letters were slightly different so now i am thinking im a seeing a normal gynacologist for cyst and do i have other ladies cancers i am so scared mandy i just want to see my sons baby and spend some time with him or her . Do you think if it is the big c i will stand a little chance sorry for asking things like that i am so scared right now.
Big hugs from a grateful tracey xxxxxxxxxxxxxxx
oh gosh yes yes yes hun you will my ca 125 was 12,000 now its 400 i think when you know what you have to contend with then you get the strength to either let it get you or fight the bastard scuze french because ive fought worse scum than this i found mine through my dogs and having info at the gp practice where i work so i went to see my gp not even contemplating at my age what it was within a week he rang me and in a month id had ct scan ultrasound and biopsy then came the dreaded wait to see an oncologist gynae so i knew what it was i was distraught for that month i cried at home didnt want to see anyone just lay in bed crying but then i thought this is doing me no good so i strated to talk and cry to my sister and fiance and i felt beter i joined this site i found that i could ring ovacom just to off load or if you want ring me illgladly send you my mail and mobile number
Aww thanks for the reply thats how i am feeling i dont even know what i have got yet but they must of picked something up on scan or bloods just dont know anything i am so scared of going to see the gynecolist oncologist next thursday i shake on a night thinking about it mandy xxxxxxxxxxx ps i admire women like you on here i feel like a whimp at the moment and i am usually a strong person xxxxxxxxxx
Ps so glad your ca125 is right down mandy thats great news xxxx
My son is an only child. He spent 7 yrs. in the US Navy and one year on the ground in Iraq.
He then came back home, got married to his childhood sweetheart and is now an NYPD police officer. Tough guy, right? Well....he was blown away in 2015 when I told him. I could see the look on his face and it was one of bewildered fear. I had to reach deep inside myself and tell him I would be FINE. (I didn't believe so at the time). He then asked me how long I had. What?! I told him I had plenty of time after I kick C's butt. After I said it, then I believed it. I got stronger when I had to reassure my husband, sister, father, son, etc. that I would be fine. The more I said it, the more I believed it. Here I am.
You shall enjoy your grandchild and will enjoy this wonderful event despite all this. The joy is the same no matter what. I promise.
The best thing I ever read on this board is that, what we have, is like a chronic condition such as Diabetes. We just have to stay ahead of it.
XOX
Marisa
Very tough guy marisa it is a terrible time having to tell people you love what you might have my youngest sons face just wanted to make me cry and he is a tough lad he used to box for his country and he boxed professional he dosent know but i can imagine what your son felt because i can see what mine are going threw there are hurting for you can i say i am so glad you are here to tell the story and i cant thank you and mhe people on here enough for there support and kind words i really appreciated it so much and yes i will have to quick its butt because i have a grandchild coming that will need me thanks again marisa
Love from a grateful trace ❤
I love boxing! and I love that we have such tough sons with tender hearts!
You got this!
Love it! thank you! You as well!
so how are youy any news? x
Ovarian mass on right Ovary
Anyone has been on Paclitaxel on its own and cyst
PPC and No Ovaries since 2009
I have just had ultra sound and they have found a 1cm cyst and 2mm nodule on one of my ovaries. Anyone had same symptoms?
