Avastin treatments. : How long is the longest... - My Ovacome

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Avastin treatments.

AndreeP profile image
10 Replies

How long is the longest anyone has been on Avastin for maintenance? In Canada the government will pay for 12 treatments, but not more as there is no clinical proof that it remains effective after this period. I know women can continue treatment through other funded methods (clinical trials, private insurance etc). I’ve had my 12 treatments and and going through the process to see if my private insurance will pay for the continuation, but I wonder how long this could go on for?

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AndreeP profile image
AndreeP
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10 Replies
Seasun36-uk profile image
Seasun36-uk

Hi AndreeP, in the UK the NHS offers 18 treatments. It seems a good drug but there may not be enough evidence (yet) to suggest how long ladies should/could be on it...BW, Linda x

Etakeloop profile image
Etakeloop

Here in Australia it is 18 treatments too. Unfortunately the day I was having my 18th dose I was told I was having a recurrence. Ho hum such is the nature of the beast

Maus123 profile image
Maus123

Hiya. I've only just started my own 3-weekly Avastin journey, but my oncologist told me this week our goal is to keep it as maintenance treatment for as long as I can bear it. Open end.

NB/edit: That's in Germany though; our insurance cover may differ from yours.

All the best. Maus

Davonian profile image
Davonian in reply toMaus123

Can I ask is this state provided or through private health insurance?

AndreeP profile image
AndreeP in reply toDavonian

Hi , this is provincial government provided, I’m in Canada. I’m not sure what other provinces offer in Canada, but in Ontario it is 12 treatments

Maus123 profile image
Maus123 in reply toDavonian

Mine is through German state insurance. Apology if the question was meant for AndreeP. All the best, Maus

LittleSan profile image
LittleSan

I was on Avastin for nearly three years for maintenance after first recurrence. This was before the NHS stopped funding it for recurrence.

Hope all goes well for you. X

AndreeP profile image
AndreeP

I agree. I’m lucky though that I am dealing with Princess Margaret hospital in Toronto which is number 1 and top 10 internationally for research.

Lily-Anne profile image
Lily-Anne

I’ve been told that if I am doing ok and continue to pay then it’s up to 18. The reason I don’t know

LA xx

Hi Andree. I'm in Australia & was lucky enough to be in the right place at the right time to get onto an Avastin trial which is indefinite (for 2nd line), as long as my CA125 stays down, no urine or BP problems & no difficult side effects. It's been a God-send for me. I had it for the first 6 months with Carbo/Caelyx, then continuing as maintenance. It's kept me in remission for more than 3 years now. That's around 60 infusions, 3-weekly. There is someone else on here who's had around 74 infusions. Best wishes. Pauline.

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