Katmal-UK

Hi, not the same setting but I am on Olaparib and have been for 4 years 4months and its very tolerable. I do belong to a fb page where ladies have said its shrunk tumours. I wish you well xx

2mini2 in reply to Katmal-UK

Would you mind sharing the name of the Facebook group and I will try and join

X

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Katmal-UK in reply to 2mini2

Its PARP INHIBITORS - drugs and trials x

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Lyndy

How did you get it?? 2mini2? I would love to get on to it but not seeing a way until 3rd line.

Bluehen

I was in a trial for Olaparib, it kept my cancer in remission for over a year. I was very weak and had slight nausea but was able to have a good quality of life. I got sick with the flu and bronchitis and I think that is why it stopped working, they said that was highly unlikely but I was sick for over a month and don't think I had anything to fight this cancer with. I wish they would let me try it again. Waiting to see what's next for me as my cancer is back. I wish you great success.

Margiedolly

Dear 2mini2, Hi! I've been on Olaparib monotherapy for 5 years, going strong! My ca125's average around 8.4😀. Have hope!

💖Margaret

2mini2 in reply to Margiedolly

As maintenance post chemo or as a monotherapy when you had disease present ?

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Bluehen

I wish they would let me continue on Olaparib. They took me off it because cancer came back in my liver. I personally think it was because I was sick with the flu, bronchitis and a touch of pneumonia for a month. Does anyone know if being sick might have caused my relapse and the Olaparib might work for me again now that I'm well? It's a long shot but I wish I could try it again.

Elizabethe

Hi

I am on niraparib which is a PARP like olaparib - works in same way. I had cancer remaining after my second line of chemo. The niraparib was prescribed to keep the cancer stable but has actually reduced it quite a lot. Side effects were hard at first but now more manageable . I've been on it 6 months.

Hope this helps, and good luck with the olaparib

Elizabethe x

Lucidalil

hi,

I had Olaparib on a trial for 2 years after i had my surgery in 2013, i was disease free for 5 months after the trial then reoccurrence . i then had chemo for 6 months , another occurrence . then went on the octova trial . a three arm trial i got the basic of caelyx lol. anyway 8 months later it stopped working for me so within the trial i had the choice of olaparib again. that was in january this year and still tumours are stable so fingers crossed. not much side effects except nausea occasional vomiting , tiredness. i work on a farm 3 days a week and make lots of items for my hospital in my spare time. so at 56 still having quite a good life - i am Brca1