Hi everyone,
I've been on olaparib for 3.5 years now and doing well on it. Doc always mentions how it's "definitely the drug that's keeping you alive right now."
Yesterday doc says we have to experiment with going off it for 3 months because elevated MCV levels (red blood cells are too big) are causing concern and can turn into Acute Myeloid Leukemia (AML). After 3 months I'll have a bone marrow biopsy to see if going off olaparib is really what caused it.
I'm crushed. I may be approaching that tiny category of patient who gets AML as a side effect of my "life saving" olaparib. Is anyone else here with me? Or heard of anyone else who is?
It feels like there is no happy outcome because staying on olaparib and preventing OC metastisis is the thing that might give me AML, but going off it means high chance of OC coming back for me. How do I emotionally respond to this!?! Argh!