Hello to all my Teal sisters,
This may sound like a silly question, and I have looked it up but I'm still confused, what do you understand NED means?
My last 2 scans showed no lesions and my CA125 has remained low, so isn't that No Evidence of Disease? And yet I may soon be going back onto chemo!
My Onc is going by my symptoms of bad to severe abdominal pain, faecal loading, pseudo-obstruction requiring emergency treatment etc. He says that we know there is seeding through peritoneum, along colon, on liver capsule, spleen, diaphragm - basically over everything that wasn't taken out during surgery and although a scan doesn't show it, it won't have gone away. He also said that chemo won't cure it.
Chemo and surgery worked well for me but I'm still in pain, and my digestion is PANTS, and yet I have a clear scan and low CA125 - which I am delighted about - but I am really confused.
I'm looking for some pertinent questions to put to the oncologist next week, any suggestions?
Many Thanks for reading this,