Dear All - hope you're all in the best place for you to today and able to enjoy the sunshine at least to some degree. I'm not 100% sure why I'm on the above combo and intend to find out at my next oncologists meeting (as when he told me at the last one it was all such a shock that the cancer had recurred after 5 months and I was going straight back on chemo having just gone back to work two months before and begun to rebuild my life/myself). I know many of you have been in the same position and it's a lot to take in but what I really want advice on is the combo above? Any one had it? Any one had it two weeks running then one week off (that's my script). I found the first day or so OK , just a bit of constipation and lethargy but then on the third day developed awful diarrhea only just beginning to subside and extreme exhaustion, dizziness and horrible spaced out feeling. I really hope this is just the first week and it calms down. I've read some scary things about cisplatin on line (hearing loss, kidney damage etc) and just wondered if anyone has had much experience. I have my next round tomorrow and really am not sure I've recovered enough from last one to have it but will talk to nurses tomorrow.
Thank you, all you kind souls. Sending hugs to one and all.