This is the first time I've posted on here and it feels a bit strange to be talking to a group of strangers but you all sound so helpful, knowledgeable and supportive so I thought what the heck!
I was diagnosed in March 2015, had Carbo/Pac with debulking surgery in the middle (they found I was primary peritoneal). All seemed fairly positive though I did have two small lymph nodes that didn't respond to treatment and there was some other residual disease remaining. Was put on Avastin but by May 2016 the beast was back so no more Avastin. I then had Carbo/Gem finishing towards the end of September last year but the results weren't that great, there was some shrinkage but not as much and the lymph nodes were growing. My local Oncology Unit said there was nothing more they could do for me and referred me to Prof. Jayson at The Christie. I wanted a break from treatment but by November I was in trouble again so started the Rotterdam Regimen in December. Ended up in hospital during the Cisplatin part of this treatment with a suspected bowel obstruction which was a horrible time, really thought that was it but managed to get things moving and carried on. I finished the Cisplatin part at the end of January and have been taking Etoposide tablets since . My last CT Scan showed some shrinkage (even the lymph nodes) but it wasn't as good as they'd hoped. The thing is I'm sure the beast is growing again as my stomach doesn't feel right and I'm scared. I don't know if there is anymore treatment out there for me, if I should explore alternative methods or if I should just say enough is enough. I'm sure you'll all say I should get in touch with my consultant but I'm not sure I can face more treatment yet. It's my birthday soon and I've arranged a weekend away with my other half, my two daughters who are in their twenties and their boyfriends and I don't want anything to spoil it. I'm sorry I'm not sounding very rational but am all over the place. Can any of you help, please? 🙂