Members Day

[OvacomeSupport]

Dear all

There have been a few posts about Members Day so I thought it might be easier to start a new thread in case I missed anyone. I’m sorry there were problems with buffering and sound with the live stream. The recordings of all the talks will be up on our YouTube channel before the end of the week and I’ll post again to let you know when this has been done.

The trustees are going to discuss regional analysis of the survey results.

With regard to transcription of the talks, this year we're writing summaries of the talks for the newsletter but transcription is certainly something we could look at for next year.

For those of you who couldn't make it, thank you for your questions through the forum. I think I've answered everyone but please let me know if I've missed any, and the full answers will be available from the clinicians in the recordings once they are up on YouTube.

For me as a new member of staff, it was lovely to meet so many of you and put some faces to names. I hope you all enjoyed the day and thank you for your feedback forms so we can make Members Day even better going forward.

Please do get in touch if you have any other queries or feedback about Members Day.

Best wishes

Anna

Support Service Manager

[Hidden]

I am interested in the fact that Ireland and the UK, Wales and Scotland were in fact worse off than our European countries for survival rates, was there any reason given for this fact as shown on the graph. I do know that the East and South East of Ireland fare worse for cancer diagnosis on the whole than the rest of the country. Could it be Chemical Plants etc

[Choski in reply to Hidden]

Yes we do need more info definitely. A study group looking at this seems a logical next step maybe?

Is it funding for early scans?

Is it lack of awareness by GPS?

Is it that routine treatment is now not good enough?

Is it that our individual genetic make-up has more of an impact than previously thought?

Lots of questions to be asked and answered.

Need to have visibility of what lies behind these stats too

I've seen this tag recently promoted by another lady on the Ovarian Cancer UK FB group and totally agree with her - we need #AAA

ACTION

AWARENESS

ACCOUNTABILITY

Let's hope this gets picked up and taken forward as not much seen about these stats yet.

I'm going to contact my MP when I feel up to it

Take care

Clare

[Hidden in reply to Choski]

Hi Clare, hope you are doing better today, I love the three A!s must remember them as they may come in handy for a research group we have started here in Ireland. It is to research what we as patients need from our gynaes so this is going to be borrowed for April meeting. You are so right

[Choski in reply to Hidden]

These were put together by a lady called Jan Hayes who also posts on the Ovarian Cancer UK closed group. I put them the wrong way as it's Awareness, Action, Accountability

She also said it's not about a ribbon colour it's about #AAA

Ribbons can become too divisive- too many colours and people bcome desensitised and- also the "it's not all about pink" is sometimes not helpful too (my paraphrase of her post.)

Her words really struck a chord with me especially this weekend.

Clare xx