Goodle (don't)

[Rachael47]

Perhaps we should ask if there is any way to put a permanent header on the opening page which says DO NOT GOOGLE YOUR SYMPTOMS! So many people suffer from doing so, including myself!

[MissEd]

Deffo. It's the first thing I did when mum was diagnosed and I wish I didn't as it's always in the back of your head xx

[Cropcrop]

Agree totally, it's a pet hate of mine, hope you're doing OK? ❤xx Jane

[Rachael47 in reply to Cropcrop]

I'm fine apart from joint pains in my right hip and knee which are a nuisance. I think it is a common side effect of Avastin, so hopefully it will go away eventually. How are you doing?

[Cropcrop in reply to Rachael47]

I'm fine thanks. Usual issues neuropathy etc etc. But we get on with it don't we 😊. Not had experience of avastin but from what's been said on here it's a known side effect. Fingers crossed it goes, stay strong ❤xx Jane

[85live4ev]

Hi Rachael, yes you are so right. A lot of the information on there is out of date & every Grimm reading. Also doctors can be quite negative about your out come maybe they have been reading too much Dr Google them selves. Go for it girl it's a great idea. Take care Cindyxx

[Choski]

It seems to scare and worry a lot of people but for me, ONCE I was actually diagnosed it was knowledge and I still do a lot of research. I take what I need, and don't get scared.

The main thing is to be diagnosed first then write all your questions down and ask your CNS or team.

If you need more detail then you can google but name sure its a reputable site and a recent research Paper etc. It's useless to be reading old information.

If you know you're easily worried etc then don't do it!!

Take care

Clare

[Mrynnwl in reply to Choski]

I was told at the very first to stay off the internet and understand why. Now however this is the kind of source I need. Can't think of the questions to ask, as my problems have been few and mild. All the little things nagging but not big enough to mention. So this forum has been a saving for me. (Ex. Diarrhea for 1 wk. lost 12 lbs. I thought was wonderful) dr. didn't at the time but turned out good. I'm not imagining things or just lazy. And my big dogs seem to understand Momma needs more TLC.

[Rachael47]

I think the trouble I had was with the long wait between being told after a routine hysterectomy that I had cancer. Google was pretty much the only source of information, and it wasn't cheerful reading.

[Hidden]

A lot of the information Doc Google has is out of date, especially the chat sites scare me to death, I try not to google and I am getting better at it. Knowledge is power definitely but you access the knowledge through your team or Ovacome Helpline or Macmillan.

[Lily-Anne]

I love Google I'm afraid. It has been great to source articles and trials. My oncologist gave me some sites to follow up too. I'm a knowledge is king believer it has to be each to their own If I hadn't googled OC I would never have found this site

LA

[Tay123]

I'm a Googler too. Plus the fact, that telling me not to do something, is a sure fire way of ensuring I'll do just that, but that's just me. I doubt I would have gotten diagnosed without Google. Took me 4 years of doctors telling me there was nothing wrong, according to one, I had trapped wind.........but we won't go there. I've googled everything I've been told by my 'team' and found that not everything has been entirely accurate. So as has been said, it's each to their own I think. xx

[Howick01]

I did not Google but looked up my signs and symptoms in a medical reference book so was able to go to GP and say 'this is wrong with me'.

I was diagnosed within 2 weeks and operated on within a month of seeing GP.

I did not Google or read up anything more until well after chemo.

I google all the time now and this seems to have worked for me

Take care x

[Petrolhead]

I'm in the knowledge is empowering camp but am used to doing quality research on scholar. The ability to be able to know what is quality such as peer reviewed research papers and scientific journals (lucky I have access to many of them) cannot be underestimated.

Each to their own

Regards Fay

[BJ_UK]

I'm afraid I'm in the camp that would rather know every scrap of information I can find about what I've got. I do have a background which has given me the skills to know what is likely to be up to date and accurate knowledge, though, which helps!

Barbara