Hi guys after having a full hysterectomy after finding I had ovarian cancer I've now just been told I have to more as there is low grade still left behind. I'm devastated and really don't think I can go through it all again.
More surgery: Hi guys after having a full... - My Ovacome
More surgery
Written by
shezzer67sm1
To view profiles and participate in discussions please or .
Read more about...
33 Replies
•
Sorry to hear this. I can only imagine your despair. You must be still feeling so weak from your previous surgery. I'm on day 7 post op debulking and know only too well what you've been through......But......if they can operate again and really kick it into touch this time then that has to be a positive thing. This horrid disease has to make us braver than we ever thought we could be. You CAN do this, it's best for you and best for your loved ones. We on here are all together in wishing you strength.
Massive hug coming your way
Love Marian xxx
Thankyou my fear is because I may need a stoma from my bowel which I know I will not be able to cope with. I know I should have this op and most probably will just feel a at the more my quality of life is over really cannot see a light at the end of the tunnel. Sorry to be such a miserable so and so. xx
Hey stop beating yourself up. You're not coming across as a miserable so and so - just weary and justifiably so! Come on put your big girl fighting pants on! Cyber hugs winging their way to you for strength and successful surgery. Sandra xx
Thankyou just off to see surgeon for some options. Xxx
Hope it goes well. Xxxx
Thankyou 😚 Xx
You are not a miserable so and so. You have been through such a lot and to be told you will have to do it all again is frightening but it will give you a fighting chance. I don't mean to make light of your situation but sometimes the fear of something is worse than the actual event. I've been in your situation and know that somehow you will cope.
Love and hugs to you
I've just been to see surgeon and he us recommending surgery in 4 weeks I'm devastated to say the least really don't think I can go through all that pain again. So unfair. Xx
I'm so sorry to hear this. Yes it is very unfair and you are understanably devastated. Like you I was terrified at the thought of the second surgery because I knew what to expect but somehow I did cope with it and you will too.
Love and hugs
Yea thankyou I have no choice and although it will mean I will miss my first grandchild birth it will give me a better future. Xxx
I went through the same. The second operation, although a big scar was not too bad. Just think that you will be here to see your grandchild grow up. Wishing you all the very best xx
Hi, like Marian has said, you really can do this, I know it's really scary but let them get it while it's still easily viable to do so and before the little bugger goes visiting other areas. I so understand your fear but hopefully it's relatively short term pain and discomfort for hopefully long term good health.
Take lots of care, sending big hugs and lots of encouraging love ❤️ xx Jane
You can do this .
I had a large cyst removed from my left overie and it turned out to be cancerous 4 weeks later I had a full hysterectomy and 4 weeks after surgery started chemotherapy .
You are stronger than you think 😁
It took me longer to recover from the second surgery but I followed all the advice took pain relief and rested and I was fine .
Life is tough sometimes but it's amazing how quickly the human body recovers and you will soon be back on your feet .
Take care xx
I know and thankyou the idea of 2nd surgery isn't great but I would do it if I had no choice it's the thought of having a stoma is the reason I can't cope. it's only 5 weeks since my last surgery and yes agree I am healing well I'm only 49 and just cannot live with a stoma.
Had stoma 7 days ago. Yeah I hate it but because like one of the other ladies commented on my message yesterday "Stoma is better than Tumour'.
Xx
is yours perment?. xx
The surgeon says it's reversible as long as I stay cancer free for 2 years. My stoma nurse says it can be reversed sooner, and just to keep on about it. Xx
Was yours through ovarian cancer?. sorry for all the questions but we don't seem to be getting any straight answers from the surgeon. Xx
Yes, I was diagnosed in October and had 3 rounds of chemo, then scanned and deemed appropriate for surgery. As you will see from my post yesterday it was a shock to wake up with a stoma, but the ovarian cancer had adhered the outside of part of my bowel to part of my bladder. In order to give me the best outcome possible for surgery (e.g.: full clearance of visible disease) he had to pay the price with the stoma. The annoying thing was that the chemo had successfully dealt with it mostly, just bad luck. But however bad I'm feeling now (7 days post op for major full debulking) I would take a stoma over tumours or potential tumours left behind to cause almost immediate problems.
I can honestly say this to you. Whatever you think you can't face.... you most definitely can.
Xx
Thankyou I know it may sound as though I'm.being silly and ungrateful it's just that after surgery one nurse told me I had no cancer in me whatsoever according to the results but just needed to confirm from surgeon she even put it writing to us, however the surgeon said as it was all stuckto my lining I have a low grade cancer left behind which chemo is no good for. so our hopes were raised then dashed. He has said we could leave it and be monitored closely as it may not grow any further. xx
You are never being silly or ungrateful. We all need to let off steam and this site is a safe place to do it. This is a disease that none of us asked for and we have to be brave even when we simply don't want to be. I felt truly hacked off yesterday and felt I wanted to give up. But today I have some fight again. It's a rollercoaster at times.
I understand the emotion of being given an 'all clear' and then having this very unwelcome news. It would have almost been better that it had all been dealt with at the original surgery. I had no time to fear a stoma.... not sure which is worse.
Please feel free to PM me if you want any more info/help/support xx
Thankyou so much it's much appreciated. will know more tomorrow after my appointment. Xx
Hey! Very similar experience like mine.
I had op to remove cyst. After surgery dr. Told that I have no cancer and all had taken out.
Then about 4weeks later I got a call that I have low grade cancer but no further op needed. They got all cancer out and then I get 6 rounds of "just to be sure"-chemo. Now ned and eating letrozole.
Sorry to ask but do they really know that there is cancer left in you and where?
I KNOW YOU CAN DO IT ! 😇❤
Hi well this is it they are saying it's in the lining as my ovaries etc were stuck to the stomach lining and they are saying it's stage 3 grade 1 however pathology said there wasn't any left behind as did the oncologist specialist nurse. it's the surgeon that's saying there is I'm seeing him tomorrow so will know more. to be honest it's been a shambles from the beginning and very misleading not to mention upsetting I think I have the choice of just waiting and seeing what happens as apparently it may never grow and just lay dormant or I could have surgery that would mean a temporary stoma. Chemo is def a know for this sort of cancer. I just can't think straight it think of anything else . xx
Hi Shezzer, I had my surgery this time last year, full abdominal hysterectomy, there was no mention beforehand of the possibility of a stoma but nevertheless I woke up with one. I was devastated! Like you I didn't think I could live with a stoma. One year on and to everyone's surprise I'm coping really well with it, both emotionally and physically, and that's despite mine being irreversible. It took a little while getting used to it and I was very self conscious about whether the colostomy bag was visible under my clothes, but I now wear an elasticated band which holds it close to my body and makes it undetectable.
I know it seems unbearable right now, but you will get through this.
If I can help in any way feel free to get in touch. Jan x
Hi Janini, your reply gives me hope that I will get used to mine. It's only been 7 days so still struggling
Marian xx
Hi Marian, I've just read your post from yesterday. Mine was a shock too, but tbh I'm glad I didn't know in advance. For me I think the anticipation would have been more scary than the actuality (which is really weird because in all other things I like to be well informed). A manifestation of how much I hated anything to do with my bowel! At first I was on a very restricted diet but I have gradually reintroduced most things although I do avoid high fibre. And every cloud.... I never again have to pretend to like brown rice and wholewheat pasta! Once I'd got my colostomy band (on prescription from Comfizz) I felt far more confident going out and about. And lastly my fear of constipation means I take a Sennakot every night before going to bed. It works for me.
Good luck with the next few weeks/months/years. Here's to you getting a reversal asap. If I can help in anyway please get in touch either here or by pm.
Take care, Jan xx
Hi guys surgeon hopes to not touch my bowel although I'm not confident but it's a 5 % chance he said and it should only be temp. xx
Hi there. My first op was 5 1/4 years ago. The scar is a boob-to-pube. Surgeon warned me he may have to put in a stoma, which would probably be temp. I was under the impression that all that had to be removed would be removed while he was doing the op.
I was shocked to learn that he didn't have time to do it all, so I was to have 3 months of chemo and then return for a 2nd op. Now for the good news : no stoma required; they used the same scar for the 2nd op and, when they use the scarred skin, it isn't nearly as sore after as the first time; finally, I'm in remission and feeling well 5 1/4 years down the track. You can do it. It's worth it for that word "remission". Good luck. Pauline.
shezzer67sm1 in reply to
wow thankyou that's very comforting, how was the healing inside 2nd time?.
Really pleased for you to with the great news.
Best wishes
Sheena. xxx
Hi again Sheena. I can't call it a wonderful time of my life. I was really in shock & a haze until I got the chemo over with. Mind you I'd been told not to go out to shopping centres etc for fear of catching germs, so I was also suffering from cabin fever. But I healed from both ops with no problems. I remember having some discomfort for a while, down my side (where the tumour had been). I suppose when you've been messed about with inside like that and had bits removed, there's bound to be a bit of discomfort. But all in all, everything turned out well. I'm sure yours will too. Pauline.
shezzer67sm1 in reply to
Awww that's great news for you yes I'm pretty confident it's the same surgeon as before and he did a good job so fingers crossed. The cancer is so low grade tgat chemo doesn't work for it so no chemo just the op I sam just the op but another upheaval but hey ho hopefully this will be the end of it. Xxx
I've only just seen your message that I received on 10th as I've only returned from a 5 day "holiday" in our local hospital this evening, recovering from a chest infection. I've also been advised to have further surgery. I've already had 3 further cancer ops since the initial big one, all for recurrences, & have felt unsure whether I can face another. It's risky, & I too may end up with a stoma, which I really don't want. But I do want to stay alive & as well as possible for as long as possible, & I want to be there for my husband & family, so I will probably go ahead. Di
Not what you're looking for?
You may also like...
More Surgery
month, after 3 cycles, as my scan showed it was having no effect. My onc suggested that, as I've...
How soon after surgery is more chemo?
26th. If I have my surgery after 3 lots of chemo how soon after the surgery do they do more chemo?...
Surgery
and I'm scheduled for debulking op this Wednesday 19th. I'm told there is very little disease left...
Surgery
given, and I have been told if there is a lot of small spotting of the disease, she will have to...
Surgery
else still had minor bleeding post five weeks after full debulking surgery, it's not bad but still...
Surgery
No surgery 
No surgery
Surgery 
Surgery 
