Neuropathy

[Shrimp49]

A year since chemo & the neuropathy in my feet is no better.How long is this likely to go on or is it permanent? I've tried amitryptyline & acupuncture to no avail.

Would love to hear from anyone with the same problem.

[Hidden]

i am 6 months out from chemo, same issue.  as mine is more of an annoyance then anything else, i try to ignore.   given that neuropathy supposedly means nerve damage, i suppose nerve regeneration....( does that happen?) would be the only cure.

maybe more  informed ladies will be along to advise.   hang in there!   

[Hidden]

Some ladies on here have taken vit b 6 and feels it helps with the neuropathy.   I know my hands used be numb post carbo and taxol especially in the mornings.  My feet would also be painful.  My favourite for this is bathe my feet in a basin of warm water and epsom salts.   Light reflexology might also be helpful if there is a maggie centre near you.   

[antheamary]

Hi there.. i have neuropathy in my feet. They feel cold & numb. I can walk ok. I am careful about trips .i have regular massages. I try swimming. My feet feel like paddles. My big toe nail is still black.  My other naills are still recovering from  1 year ago. I read it can take up to 11yrs to fully go. I am thankful i can walk. I met a lady in hospital who

is confined to a wheelchair. I do hope yours is recovering  all be it slowly. 

[Cre27]

I,too,suffer with neuropathy. Fortunately it's annoying rather than painful like yours. I have found acupuncture has helped me, just made me more comfortable around the ankles and the back of the calves. The real reason I'm replying is that I read somewhere on Google that a scientist in America has discovered the underlying mechanism that causes this by doing research on zebra fish injected with paxitaxil and they are hopeful that this will lead to drug development to reverse the nerve damage. I know this doesn't really help us short term but at least research is getting closer bit by bit. I am a year since last chemo and was told any improvement would be very very slow and might get worse before it got better!!!!!! Not helpful to us sufferers!!! I'll be interested to other replies you get. Take care x

[Donna8416]

Hun,10years from chemo and still joint and muscle all over pain and neuropathy in feet is still there.   I was Ac/ cytoxin(red devil)  and taxotere for 12 dose rounds for triple neg. stage 3 b.     I wish there was better news on my end but prednisone and occasionally pain meds only if necessary.   Mostly Tylenol.     And lots of vitamins d and c 

[lesleysage]

Hi Shrimp,

Like everyone else, I can't offer much hope of it reducing in either my feet nor hands.... I exercise frequently (yoga, pilates, swimming and walking) and gently, and when walking in countryside on uneven ground use two walking poles as I really don't want to fall and break bones! For hands, I keep working at bits of weaving, spinning, knitting - anything which keeps the hand joints working; stop when the  joints get too painful, bit of a rest and a cuppa/phone chat with a friend and then pick up the work again.

Warm wishes, Lesley

[R16728]

I've been 8 years in remission after chemo and about two years dealing with neuropathy in my lower legs. So far it's a horizontal problem for the most part ie. when I lie down or stretch out for longer than 30 minutes or so, the numbness takes over. Night time is a challenge. I use tylenol and rub on an arthritic med called Voltaren. The latter deadens the area so I don't feel sensitive to the rubbing of the sheets. I wear heavy socks and use an "electric blanket" which has become essential to my arsenal. I find I can sleep about three hours at a time so at least once a night I'm up and walking to bring my feet back. As with the rest of you, I'm looking for solutions or ideas.