When I had my meet with the oncologist after my op I felt a reluctance for her to impart detailed information. I realise that some do not want to know it all. However, from the questions that I was asking it was obvious that I am the sort of person who needs detail and all of it!
She eventually asked me if I wanted a copy of the scan report and a copy of the histology report- of course I did. On a winning streak I asked for a copy of the MDT meeting notes when talking about me. Got the lot a few days later. Whilst I had to look up a few details it was useful to understand the disease.
What I found interesting in the meeting was that I had to ask what the grade was- surely one of the first things I should be told. Also when I was told basically 2 options- no chemo but to watch and wait and the chemo route. ( I am stage 1C1 mucinous). I asked what would she recommend- she just repeated the options. Just for fun I asked the question another twice with no recommendations each time. Luckily I had already decided what would be right for me but I was not impressed with the process.
All in all I felt I had to push for anything more than the basics even when it was obvious I wanted more.
I have gleaned much info from this site and others- thanks guys. You all give info freely and is much appreciated.
So I was interested if anyone else's experience and if I was expecting too much.