This is my 2nd time with Carbo/Caelyx, 6 months completed March '15 with very few side effects. I restarted in May of this year as one year without treatment allowed one site of the cancer to grow and a 4th site to develop. For the first 2 months I just had the usual post-chemo feelings of nausea and wretchedness then after month 3 I developed this awful pain in my right buttock reverberating down right leg. At first they thought it was a UTI and was given anti-biotics. Further urine test showed no UTI but pain continued. Oncologist just said Caelyx can cause muscle pain.
It disappeared a few days before 4th treatment but 3 days post chemo I had strong stomach pains as well as usual post chemo problems. The pain moved round from my stomach to the buttock/leg after a week and by this time I had moved up from Paracetamol to Co-Codamol plus hypnotic at night. After a couple of weeks the pain is now anywhere in abdominal cavity/buttock and in desperation I sometimes take Tramadol as well.
I find it hard to believe this is just caused by Caelyx. I'm due for my 5th treatment but the pain is not subsiding.
Has anyone else experienced this?