Making me worried

[jmackmom]

Ok. Does anyone NOT have a recurrence? This is all making me paranoid.

[angeladale]

Oh dear , I can see the problem , maybe .

Not eveyone gets recurring although many do ...but sometimes with years between ...and sometimes never . Perhaps when we are OK we go off Ovacome and similar sites , and try to pick up where we left off .

Many women I have met at the hospital don't DO community websites . They just don't want to know , which is fine , but we don't get their stories so we'll never know ....and so on .

Clearly you are worried and upset : speak to your CNS or MacMillan ...try to be reassured . We can all , only do one day at a time ...

No , it does not always recur ....in the five years since diagnosis , I have seen treatments change and better outcomes .

Be bonny , and avoid Dr Google !

[jmackmom in reply to angeladale]

That is a great response. Thanks

[Katmal-UK]

Hi. I have had 3 recurrences in 9 years and my mum had none in 14 years and we were both diagnosed at the same stage so as you can see even being mother and daughter proves we are all different. Angela's advice is good, stay away from google and particularly statistics. Statistics are just that and cant tell you what will happen to you. I wish you well xx Kathy xx

[Rosanne123 in reply to Katmal-UK]

Hi katmal I hope you are well sorry to ask but when you were told you had a reacureance did the c word disappear because my ong have said I will neaver be free of this bloody c word sending my love to you both xxx

[Katmal-UK in reply to Rosanne123]

Hi I was originally told I had 2 years. That was 9 uears ago. As you can see still here and despite 2 recurrences I am currently NED. I say im just waiting for a recurrence but my onc says who can say. So I wake up each day take a lung full of air and carry on. Im not gonna worry bout wat might happen be wasting the time I have left. I hope you are doing well xx

[jmackmom in reply to Katmal-UK]

Thanks so much. I refuse to be defined by this and for now I'm just thinking of it as a bump in the road.

[angeladale]

And you Kathy , are amazing !

[Katmal-UK in reply to angeladale]

I think Ive been lucky tbh

[jmackmom in reply to Katmal-UK]

I just read your bio and you ARE a warrior

[Dollysmum in reply to jmackmom]

Kathy = Xena, Warrior Princess. = Epic.

xx

[Katmal-UK in reply to Dollysmum]

I wish I had the figure..... lol

[Katmal-UK in reply to jmackmom]

Honest, Ive just been lucky .... and maybe a bit stubborn lol

[ShamilaS in reply to angeladale]

She really is! Every time I'm worried for my mom I think of Kathy and tell my self we will get through! Thank you Kathy for your positive contributions. Xx

[Katmal-UK in reply to ShamilaS]

Just lucky and a bit (lot) stubborn ! Really hope your mom is doing ok. Having watched my mum go through this I know how tough it is for you, mums are special, still miss mine xx

[valeriel]

Angela makes a very good point. I was always on this site when undergoing treatment but now just read contributions to see how everyone is doing and contribute if I think I can. So .... does anyone not have a recurrence? I don't know but I have been cancer free for two and a half years and going well. The way I look at it is that until it returns, if it returns, I can't do a thing about it! I know the statistics but they are based on historical data and so much has changed. I also know that if it returns, I can deal with it because I have done it once already. There is so much encouragement to see cancer as a chronic illness to be managed which I think helps us see that we can live with it. Fellow travellers on this site are testament to that. Thinking of you all. Val xx

[luluw in reply to valeriel]

I feel exactly the same way, Val-thanks for your post.

Lou xxxxxxxxxxx

[Yoshbosh]

This worries me too. I'm nearing the end of treatment for my my 'first' (only?!) occurrence.

What I keep telling myself is that those who have only ever had it once are off living their lives, not checking back in on support groups too often - who wants to be reminded of a grim time in their lives? I know there are a few ladies on here who have been clear for many, many years, and they pop in from time to time, and many ladies who have lived with this disease for a long time and are still kicking it back.

From my 'real life' friends and acquaintances, I know of 4 ladies who had OC, and thus far, it has never come back. One had it at 18 and is now 36, the others had it in their 40s and are now in their 70s/80s - so there's hope for us all!

As my mother-in-law would say, keep your pecker up, jmackmom - you can do it!

[Zena41 in reply to Yoshbosh]

Wow vicki what is your friends secrets? I can see how this can bring u positivity x

[jmackmom]

Thanks. I feel better about it.

[Hidden]

Well the answer is a billion dollar question, some of the ladies on here are more sensitive to chemo than others so we all react differently but some relapse and some dont and no one knows why. I celebrate my ten year anniversary with OC next week, have had recurrences but I am alive and kicking very hard.

[luluw in reply to Hidden]

I hope you have the biggest celebration imaginable planned!! Your posts have always helped me personally. Thank you and may you continue kicking for many years.

love

Lou xxxxxxxxxxx

[Hidden in reply to luluw]

HI Lu, nobody would want to be in my way when kicking haha

[jmackmom in reply to Hidden]

Thank you for answering ME. I was getting excited about each answer and only two had anything to do with me. I appreciate a response.

[Rlenesue]

Personally, I had breast cancer in 2007, ovarian in 2008, considered separate cancers and not reoccurence, was cancer free until this year, 2016 with ppc and finished treatment Last week. Hoping for no reoccurence but if it happens I'll deal with it. There is no good to come out of worrying about it. Continue to be the warrior you are.

[Lupilindz in reply to Rlenesue]

Hi I had Breast Cancer 2007, and now ovarian 9 yr gap non related as another primary but clear cell carcinoma and allergic to taxol x last chemo next Wednesday with Carboplatin which my type off cancer is resistant too xx iv had a scan and my c125 checked and await results but what will be will be and I will stay positive and everything they give me I will take x but hopefully I will get a lot more years as have an awful lot of things still to do xx

[jmackmom in reply to Rlenesue]

I hate to be the skunk at the garden party. I admire you all so much for fighting for your lives. I'm on first line chemo Single agent Carboplatin. I'm having few side effects but seriously if I have a recurrence I don't think I can do it again. This has been the best year of my life professionally. I filmed my first feature film in Spain in March and two weeks later had surgery and was diagnosed. I want my life back. Kudos to you all.

[Dollysmum in reply to jmackmom]

Hi,

'Skunk at the garden party' implies that you feel out of place. I get that.

Ovarian Cancer is no garden party but we do our best to rub along and help each other where we can. Some find therapy in helping others in some small way. All of us are at varying degrees/stages of the disease and no one wants a recurrence.

We do what we do to stay alive, positive and sane. My own sanity has been severely tested over the last 10 months. I'd never been ill in my life let alone anticipated the car crash of events since diagnosis late last October. I'm praying that my clear scan at the end of first line treatment remains that way at least for a long time. However, I do know that if it does return, the lovely, generous women on this site will be here to guide me as they have before.

In the meantime, I'm slowly getting my life back but with the added benefit of getting to know some wonderful people along this often at times terrifying journey.

I wish you the very best.

Debs x

[jmackmom in reply to Dollysmum]

Not wanting to be the skunk at the garden party means I don't want to ruin what you ladies have but I wanted to get out what I was feeling

[Rlenesue in reply to jmackmom]

And you should get it out, it's very cathartic. Get mad, yell, scream, whatever you have to do to get through this and you will. I feel the way you do about reoccur encephalitis as this cancer, my third, has been the hardest for me. The treatments were awful and I'm just sick of it. Then I look at my kids and I know I have to fight. This film you speak of and this being your best year professionally is just the beginning. This isn't the end it's just a new scene.

[jmackmom in reply to Rlenesue]

You are amazing

[hunkydory]

I had colon and ovarian cancer stage 3. That was.12 1/2 years ago and no recurrence yet. I do not think about it. I am very lucky and grateful for this. I live for today and will deal with tomorrow when it comes. Good luck and hugs to all.

[angelina]

Hi I had clear cell OC, coming up to 5yrs ago and have been very lucky...stayed clear. It hasn't been easy...I felt my life was ruined after all the treatment, I had to give up my job which I loved.....most of my so called friends disappeared and I felt "mutilated and battle scared" also very depressed and BALD. But after time it passes and I now enjoy everyday if I can, and have lots of holidays. It takes time to recover after treatment but you will get there, and of course sounds like you have a lovely career ahead of you.

My best wishes

X🌷X