Chyle Leak

Chyle Leak

Hi, I'm very interested to talk to anyone who has had a chyle leak post OC surgery. I currently have one and I'm following a mega low fat, high protein diet in the hope that it will heal. So far I've not met anyone else with this condition following OC surgery and I've struggled to get information regarding the issue.

Best, Lisa x

P.S. Can't wait to eat a cake!

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  • So sorry you have this problem, Lisa. I've never heard of it before so can't help but would just like to send my sympathy. Hope you get some helpful answers soon - and you can soon eat those gorgeous cakes.

    Love, Solange xx

  • Hi Lisa

    I Had never heard it before either so with my usual medical curiosity I was naughty and googled it ! I just got an overview of it so just go let you know that there are a few sites that give simple explanations. You may already know this anyway so forgive me for repeating it. Chyle is a natural milk like substance that contains lymph and fat and it and the lymphatic system help nourish the body and the lymphatic system helps fight infection. Due to surgery occasionally there can be leaks in the system. This is where your strict low fat diet comes in. You may have to use supplements to help you keep your weight up. Eating less fat reduces the Chyle so leak reduces or stops . It may only be for 3 or 4 weeks but of course your Dr will tell you. If it doesn't work I believe there are other options which I didn't look up.

    Anyway Lisa. Put away those delicious cakes for the moment. It's a small price to pay to solve the problem . We could all do with less fat I'm sure. I am sure there are forums on this particular condition so might be a good idea to discuss with people with the same condition. The main thing is to strictly follow your doctors orders . Fingers crossed it will be sorted quickly for you and maybe you will be allowed to celebrate with a luscious cake !

    XXX

  • Hi, thanks for the reply. I've been on a 10g a day low fat diet for 6 weeks now. My consultant had not had this happen before and therefore it took quite a while to get sorted with the correct diet. The majority of information I gleaned for myself from the Internet as you have just done although information can vary from 0 fat to 20g depending on site/hospital. I ended up getting info from a dietician at St Mary's Hospital Imperial College London by phoning myself, I live in the North East. I now have a dietician helping me at the freeman but it's the first case she has had too so a bit of suck it and see.

    Because I have had such a difficult time getting the right info (no forums) I thought it was worth posting, someone may be going through the same thing with little or no support.

    It's a mega restrictive diet which can lead to malnutrition (you need fat to absorb some vitamins) if not managed correctly but obviously well worth the result if it heals the leak so the cakes are away for now but the list of 'can't wait until I can eat this food is growing by the day'.

    Best, Lisa

  • I'm glad you are on top of the situation Lisa. As you know this is an OC site and it also helps us PPC women. I am sure I came across one for your condition last night when I was searching . Possibly an American site. It really is annoying for you so here's hoping that sacrificing those cakes does the job ! I hope your dietician has substituted the lucious cakes with some tasty alternatives . I hope you dont have to wait too long until the,leak stops and you can get back to normal. Have a nice weekend

    XXX

  • Hi, sorry am I missing something or maybe I have not communicated well. My chyle leak is a side effect of surgery for ovarian cancer so I think I have the right site?

    Trying to manage this on top of surgery, diagnosis of 3c OC and chemo is a challenge and although unlikely it would be great to talk to someone in the same position.

    If I'm missing something here please let me know?

  • So sorry Lisa

    I was the one who didn't read your post properly. I thought it must have some connection but then the websites just vaguely connected them. You must have thought , what is she talking about ! Put it down to my last Mon chemo brain please ! I will read my posts more carefully in future. Now I had better lie town to renew a few brain cells ! Good night

    XXX

  • I know exactly what that feels like, ;-) no problem, it's a lonely journey sometimes even when you are surrounded by people who love you. People on here seem lovely and I'm hoping to make some good friends, you can be no one. X

  • I was warned that as a conceqeunce of having lymph nodes removed a leak could occur. I asked if they would drain it off the answer was no. So I asked what would happen and they said the would explain skin care and massage... Hope you leak stops and you can have cake x

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