Cannot see chocolate cyst in ultrasound after a month

[Surbhinonni]

Hi, i am 20 nd half yr old and last month was diagnosed with PCOD in my right ovary and 4 cm plus CHOCOLATE CYST in my left ovary during my periods from ultrasound after dealing with all symptoms associated from last 2 yrs. (eg- Hirsutism and lot more)

Now after a month I went for second opinion during my periods and Radiology Doctor could not find my chocolate cyst During my ultrasound. My both ovaries are swollen and bulky in size and they failed to perform 3d ultrasound and are suspecting PCOD. They have called me for 3d ultrasound after 10 days.

i am attaching my latest ultrasound film.

But my all issues and pains have increased than before.

Can this happen?

I am really confused that what should i believe and what does this means and not able to figure out what should i do.

I am dealing with this on my own with no support from anyone, so please Any help will be appreciated.

[Katmal-UK]

Hi . I know nothing about Chocolate Cysts, though I have heard the term before. I suggest you ring Ruth our Ovacome nurse who will hopefully be able to reassure you and give you more information. I'm sorry that you are so young and having to deal with health issues on your own. I do hope that someone else here with knowledge replies . Please keep us posted, if we can help and support we will. Wishing you well. Kathy xxx

[Tesla_7US]

Go to a gynecological/oncologist for a second/third opinion to rule out OVCA. I went to 5 docs in 2 years trying to get at root causes for indigestion and bloating. I was repeatedly misdiagnosed. Rule out OVCA now!!!! Also ultrasound doesn't detect OVCA, only a CAT scan can detect it. Tesla in Seattle

[indego]

Have you had an endometriosis diagnosis?

Chocolate cysts are another term for endometriomas. (Cysts that are filled with endometriosis, which looks dark brown, hence the name chocolate cyst.)

If you have endometriomas, it's a sign that you have invasive/wide spread endometriosis.

Chocolate cysts generally won't disappear on their own, but they can leak and shrink.

If you have endometriosis in your ovaries this may account for the swelling in your ovaries during your period.

You mentioned they suspect PCOD based on ultrasounds... Are they referring to Poly Cystic Ovaries (Ovaries which create 12+ cysts per cycle) or Poly Cystic Ovarian Syndrome, which is an endocrine disorder?

I ask because normally PCOS would be picked up via a blood test, and my understanding is it's not actually known to cause cysts.

Where as Polycystic Ovaries can produce a huge amount of cysts (my record is some where over 25 when the lady doing the scan cracked it and stopped counting) and cause ovarian inflammation.

I have stage 3-4 endometriosis, and I usually had a few small endometriomas in both ovaries. I'd have symptoms from them, but on the months where my ovaries went polycystic, the pain from my endometriosis increased.

It's also worth mentioning that endometriosis can raise your CA125 levels, and create and mask a lot of O/C symptoms. If your scan in 10 days still shows swollen ovaries, it'd be worth further investigation.

[indego]

I tried to edit to point out that endometriosis and chocolate cysts can both push up your CA125, making decent imaging more important, but it didn't work...

But it'd be worth following up if it IS a chocolate cysts, because mucinous tumors (which can be totally benign,) can be mistaken for chocolate cysts on ultrasounds.

But a mucinous tumor would be FAR less likely to shrink on a scan than a chocolate cyst.