Never ending.

Does anyone ever feel as if they are never going to feel well again?i finished my chemo mid feb this year I really thought I would begin to fee well by now.but no 3weeks after the chemo I started with the neuropathy.it wasn't really to bad but I always seem to draw the short straw.my hands are so painful .they feel like they are burning,my fingers are just falling when I send a text and in the morning they are really numb.im bothered with itching but hopefully that is beginning to get better.i just ask myself what is going to happen.my ca 125 is up so more chemo I would think.do I really want more if this is going to happen.is there a light at the end of the tunnel.regards Carolyn x

[TrishLey]

Hi Carolyn,

I've started this journey in 2011. I finished my 3rd line treatment in Jan. I won't pretend that it is not tough but it does get better Keep going, don't be hard on yourself, be patient with you, take pain medication, get foot rubs and hand rubs off whoever offers, if no one offers drop huge hints Rest when you want and exercise if you can. I only recently started to walk straight down the stairs again!!!

Wishing you all the best,

x

Trish

[LesleyGreengran]

I find it takes longer than a couple of months to get over the effects and just when I think it's going to go on for ever it starts to lift. Hang on in there. I used to listen to REM's 'everybody cries' cos just as he's singing that, there's a voice comes in saying 'hang on'. It will get better just when you've stopped expecting it to.

[Hidden in reply to LesleyGreengran]

I agree, the treatment does take its toll on us. What I found helped was adding epsom salts to foot basin for feet or in the bath, it does help. Also you need to buy comfy shoes like Heavenly Feet that are anti stress on the feet. The more you walk around it helps the circulation so I would also recommend that. I know what you mean, some times its like a merry go round that we cant get off, but if we opt off ourselves it can have a detrimental effect so we just keep on fighting so hand in there. Maybe find a support group near you to get help and support or ask the Macmillian nurse in your hospital or gynae liason nurse.

[honiton]

Hi Carolyn,the list is endless as to what the treatment does to you,I finished my chemo last July and had to stop avastin january,I have itched,ached,wobbled and cried and like yourself I have wondered if it comes back could I do I it all again,and I don't know,but as scary as this may sound I am beginning to just myself to the fact it's never going to go away,so is scratch when I have to,take pain killers when I ache,walk up and down the like a toddler and scream when it all gets to much,please dont give up on yourself,we are tough ladies and always here to help you when ever us x

[Alex53]

Omg I'm not alone and it's not just me. Thank you!

[RG3030]

This has been so helpful. Thank you very much every one of you