Hi all, as above, I have been in the Trovax trial since mid Dec 2014, just had my 7th vaccination today. But my CA125 is now over 8,000 and they want to start chemo , scan date is 5th May. It was a double blinded trial so I don't know if I was on the drug, but if I was, it has not worked.
I had a few pointers that made me think I was, and after the 6th vaccination I felt that lots of things improved and I have been feeling very well, even forgetting I had cancer as I carried on with life lol !!
Burning feet, hot flushes, night sweats all eased off, bowels (although ok) improved, indigestion calmed down, pins and needles in my left arm (left over from my bowel episode last March) all gone. So some good has come out of it.
Still have an issue with my throat and dry mouth over night which I am hoping is linked to the drug and not a spread. Sinus have been bad but then I do suffer with them.
I was surprised they still gave me a vaccination today but was told the plan goes on until progession is confirmed with a scan. There has been no drop in my ca125 all the way through ( this is the first time I have asked ) as I knew it was going to be crunch time.
So it just shows what a sneaky cancer this is - to feel so well and have a CA125 of over 8,000. It will be carbo and caylex for me, typical, bet the summer will be the best for years and I won't be able to sit in the sun or swim.
Sorry results are not better to give you all some hope, but remember I may not have been on the drug, they probaly won't tell me but I will ask.
Best wishes to all, Trix