un known treatment?

[copperpenny]

I am in the US. Things are done differently in the UK from what I've read. Maybe the everolimus isn't available there yet. Brand names include afinitor,afinitor disperz, and zortress.

I read that there could be something available for the p53 in the next few years.

I don't know much else.

[Whippit]

Hi Copperpenny

So far Everolimus is only available through the National Cancer Drugs Fund (England) for breast and pancreatic cancers and metastatic renal cell carcinoma.

I haven't heard of any trials with Everolimus - but perhaps someone here has and can advise you.

best wishes.

Annie

[Hidden]

Hi Copperpenny,

This might be more difficult now you have started two threads on this, but I just wanted to say that Fernanda replied to you on your other thread she lives is Brazil and knows a bit more about it. XX

[daisies]

Hi There,

I am in Ireland and I understand that P53 is a tumour repression gene and is missing is some people, and as you know some drugs do different things. I am on Avastin (for recurrent Ovarian Cancer that has spread) but it is available to all - I know that it is now being used in some 1st line treatment. And of course it does not suit all. Had not heard of everolimus being used for OC though. Take care,

[Hidden in reply to daisies]

It is good to know that you have access to Avastin....I thought it wasn't available in Ireland ....I know it isn't suitable for everyone though.

Best wishes love x G x

[daisies]

Hi Gwyn, Thanks for your wishes, and I agree fully that Avastin does not agree with everyone, and that those of us who can take should be thankful. Avastin is widely available in Ireland - whether on public health system (your NHS) or if on private health insurance - and there are no quibbles about the cost of length of time a person is treated with it. I know from the blogs and also media that it is like a post code lottery in UK. Hope all well with you. xxx Daisies

[Hidden in reply to daisies]

Hi Daisies,

I am so pleased that you have said this... as I was led to believe that you don't have the same advantages as us in England....

I have had two recurrences, when I was first diagnosed Avastin wasn't available, then when I had a recurrence Avastin was only given for first line treatment, ( and I was on my second) it has been approved for second line treatment now, and I have since had third line treatment, (so I keep missing the goal post)

I don't know whether it would have been suitable for me or not...I try not to worry about what I might have missed out on ...as there is no point....

besides I think the treatment I have had seems to have worked.

Wishing you well on your treatent love x G x

[copperpenny in reply to Hidden]

I was told I'd need it the rest of my life by my oncocologist . My surgical onc. said a year and we'd go from there. Now my onc wants me to do the afinitor pill for the p13k , and still do the gemzar etc still for the p53 . I get confused with all the names and treatments .