I was diagnosed Stage 3 OC in 2008. I have in that time completed three treatments the first two holding my CA125 in a sort of steady category for quite a while. We decided to go ahead with a third line of treatment when my CA125 reached 1900 and I was experiencing a few symptoms. Carboplatin was the drug but it went pear shaped when I experienced an anaphylactic shock so then completed a desensitisation program with the Carboplatin which was finally completed last May. The CA125 only reduced marginally and now the score has climbed into the 2000's but no symptoms so my Onc is happy to watch and wait. Has or is anyone in this situation? Are any of you watching and waiting and what sort of symptoms have you experienced when you so ok enough lets get treatment going again, charming as that treatment is, I now call it my potting mix solution with the odd glass of pond scum thrown in. I am a very positive person, I am too busy to dwell on sadness and I am also a fighter. Learning to play the piano during all of this has been my saviour, I ain't going anywhere yet but it would help me to know if anyone is doing the same. This is my first post ever even after being on the site for a few good years.
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