Hi Ladies, today I learned that my CA125 is 19 and grew from 14 in one month. My TAC is not showing minimum changes ( less than 1 mm) according the Doctor report.
My ONC told me after this information that I will start a second course of Chemo in one week from now, during next 3 months.
I though probably is too conservative therapeutical decision for the first though. After a second though I feel safer with this option.
I would appreciate if you have been on this situation if you can telll me your experience or suggestions. Can you consider is "progression"?
You can see also in my profile my OC stage IV and diagnosis in 2012.
Thank you for your time and support¡.
ALl the best.xxxxx:luv.Pilar
Dear Pilar
I wonder where you are located. I have never heard of anyone going back on chemotherapy whilst the CA125 count is within the normal range. I hope someone will correct me if this is untrue.
My CA went from the nadir of 7 and is currently about 55. I had a scan in January which showed some progression of disease, and had another last week but I am still on wait and see as far as chemotherapy is concerned. My oncologist is keeping a careful eye on me and I'm keeping a diary to record any discomfort I'm feeling. I'm gearing up to resume chemotherapy in the next month or so or perhaps immediately if my oncologist recommends this.
It was interesting to read you had two surgical processes for your Stage IV. Were these radical surgical techniques which peeled the tumours from organs or was it a total abdominal hysterectomy? I'm just wondering whether the chemotherapy regime would be different for a woman who'd been given two sets of radical surgery.
If you are a bit concerned I think you should go back to your oncologist and ask them to explain again why they are recommending this course of action in your case. You could equally well ask for a second opinion at another hospital.
I do hope you get more information in order to understand why this advice has been given.
xxx love Annie
Dear Annie, thank you for your anwser. I had a full hysterectomy the first time and then, because of a suspect (thal later was not malignant even a small CAT activity) a second surgery.
To me is somehow surprising to have 19 CA125 and no progression in the image test and with just Avastin. Then Avastin has been stoppe on Friday and redirected to have a full Chemo in a week from now
Definitely I will ask for a second opinion. I am bewteen Spain and US and I will go to MD Anderson
I truly appreciate your suggestion and support,
All the best.xxxPilar