Am I posting to the right forum

[Lighthearted]

Has anyone in Ireland with a reoccurrence of ovarian cancer. I’m Braca 1 positive and it was stage 2. Now it’s bk beliw my cervix. I don’t know where to go to get help or info.

[Tvam]

Try the Irish cancer society, they have a 'buddy' service where they can put you in touch with people that have similar diagnosis and treatment etc to yourself, might also have information on cancer support services in your area

[Lighthearted in reply to Tvam]

Tks Tvam. First time I rang them there was one similar to what I have to talk to. Covid times. I should not have googled things last night about ovarian and reoccurrence. Tks again

[Gercc]

hi, I just signed up for an meet up in the Dean in Cork. It’s on next Saturday. This is the first time I’ll be doing this so looking forward to speaking to others. They also have a zoom call for the first hour if Cork is too far for you. I’m 3c hgsc looking at first recurrence.

[Lighthearted in reply to Gercc]

I’m not sure what hgsc is. So if I ring to get zoom link from ovacare. Were you not on parb inhibitors at 3c. Sorry to hear of your reoccurrence. It’s daunting

[Gercc in reply to Lighthearted]

Hi, it’s high grade serous cancer. I was on Avastin from January 23 to August but my bp went sky high and my kidneys were being affected also. So took from September to December for a new lymph node to enlarge. Oncologist said not to worry as it could just be inflammation and my ca125 went from 40 to 47. Got a call three weeks ago to go see her. My case had been reviewed and the head oncydrvided there was evidence of disease in soft tissue on my left side and the new node dies show disease. I’ve opted to eat till my next scan in March to see the scan and then go the chemo route. Gemzar and platin. Hoping for a miracle!!!. Good luck to you

[Tulips66]

Hi , Ovacare is the Irish version of Ovacome. They have virtual coffee mornings & Sometimes they have patient days in different parts of Ireland where they have speakers like medical professionals, patients & you get to chat with other women with Ovarian Cancer .There are plenty of Irish ladies on Ovacome too if your looking for any advice, support or just want to rant . I am Brca negative & on a parp after chemo for a recurrence too.

[Lighthearted in reply to Tulips66]

I don’t know why I googled last night about life span of ovarian cancer patients esp reoccurrence. Maybe those Parps help. I couldn’t get them first time around. Tks Tulip

[Tulips66]

You are better off not googling because sometimes the information is not up to date and we are all different , some women on Ovacome have recurred a few times and are still around 10, 13yrs later. Also new treatments like Parps ,which are only licensed in Ireland less than 3yrs ago can increased the life expectancy of women diagnosed with OC. I myself was diagnosed Jan 2019 and had a recurrence in 2020. I am on and off the Parp Niraparib since Jan 2023 . Best of luck going forward

[Lighthearted in reply to Tulips66]

Tks so much for reassurance. Best of luck to you to you to

[chicks42]

ovacare.ie/events/event-reg... is the link to register for the coffee and chat on Sat. It is a lovely safe place to meet others and have a chat. Have you every used the thisisgo.ie platform. Its a very useful, reliable site for information and it is Irish based and it was designed with the help of Irish patients. There is also a new Facebook group, Ovarian cancer support Ireland where you can connect with others that have ovarian cancer

[Lighthearted in reply to chicks42]

Tks so much for all the info your very kind. I’m just nervous of this waiting around to get seen to meanwhile wondering is it growing inside me. Told some of my bowel may need to be removed to get at it. That in turn may lead to getting a bag. Feels like it’s never ending. Sorry for rant. Tks again for your help chick