Am I posting to the right forum : Has anyone in... - OvaCare

OvaCare

2,046 members1,117 posts

Am I posting to the right forum

Lighthearted profile image
11 Replies

Has anyone in Ireland with a reoccurrence of ovarian cancer. I’m Braca 1 positive and it was stage 2. Now it’s bk beliw my cervix. I don’t know where to go to get help or info.

Written by
Lighthearted profile image
Lighthearted
To view profiles and participate in discussions please or .
11 Replies
Tvam profile image
Tvam

Try the Irish cancer society, they have a 'buddy' service where they can put you in touch with people that have similar diagnosis and treatment etc to yourself, might also have information on cancer support services in your area

Lighthearted profile image
Lighthearted in reply toTvam

Tks Tvam. First time I rang them there was one similar to what I have to talk to. Covid times. I should not have googled things last night about ovarian and reoccurrence. Tks again

Gercc profile image
Gercc

hi, I just signed up for an meet up in the Dean in Cork. It’s on next Saturday. This is the first time I’ll be doing this so looking forward to speaking to others. They also have a zoom call for the first hour if Cork is too far for you. I’m 3c hgsc looking at first recurrence.

Lighthearted profile image
Lighthearted in reply toGercc

I’m not sure what hgsc is. So if I ring to get zoom link from ovacare. Were you not on parb inhibitors at 3c. Sorry to hear of your reoccurrence. It’s daunting

Gercc profile image
Gercc in reply toLighthearted

Hi, it’s high grade serous cancer. I was on Avastin from January 23 to August but my bp went sky high and my kidneys were being affected also. So took from September to December for a new lymph node to enlarge. Oncologist said not to worry as it could just be inflammation and my ca125 went from 40 to 47. Got a call three weeks ago to go see her. My case had been reviewed and the head oncydrvided there was evidence of disease in soft tissue on my left side and the new node dies show disease. I’ve opted to eat till my next scan in March to see the scan and then go the chemo route. Gemzar and platin. Hoping for a miracle!!!. Good luck to you

Tulips66 profile image
Tulips66

Hi , Ovacare is the Irish version of Ovacome. They have virtual coffee mornings & Sometimes they have patient days in different parts of Ireland where they have speakers like medical professionals, patients & you get to chat with other women with Ovarian Cancer .There are plenty of Irish ladies on Ovacome too if your looking for any advice, support or just want to rant . I am Brca negative & on a parp after chemo for a recurrence too.

Lighthearted profile image
Lighthearted in reply toTulips66

I don’t know why I googled last night about life span of ovarian cancer patients esp reoccurrence. Maybe those Parps help. I couldn’t get them first time around. Tks Tulip

Tulips66 profile image
Tulips66

You are better off not googling because sometimes the information is not up to date and we are all different , some women on Ovacome have recurred a few times and are still around 10, 13yrs later. Also new treatments like Parps ,which are only licensed in Ireland less than 3yrs ago can increased the life expectancy of women diagnosed with OC. I myself was diagnosed Jan 2019 and had a recurrence in 2020. I am on and off the Parp Niraparib since Jan 2023 . Best of luck going forward

Lighthearted profile image
Lighthearted in reply toTulips66

Tks so much for reassurance. Best of luck to you to you to

chicks42 profile image
chicks42

ovacare.ie/events/event-reg... is the link to register for the coffee and chat on Sat. It is a lovely safe place to meet others and have a chat. Have you every used the thisisgo.ie platform. Its a very useful, reliable site for information and it is Irish based and it was designed with the help of Irish patients. There is also a new Facebook group, Ovarian cancer support Ireland where you can connect with others that have ovarian cancer

Lighthearted profile image
Lighthearted in reply tochicks42

Tks so much for all the info your very kind. I’m just nervous of this waiting around to get seen to meanwhile wondering is it growing inside me. Told some of my bowel may need to be removed to get at it. That in turn may lead to getting a bag. Feels like it’s never ending. Sorry for rant. Tks again for your help chick

Not what you're looking for?

You may also like...

I am still here😉😀

I haven't written on here for a few months but,I have checked in now and then.Had a difficult few...
annieH1 profile image

This year I'm off to Sunny Spain.,Or am I!

Decided on next aim which is holiday in Sept on the Costa.Plenty of vit.,D,no stress(I...
annieH1 profile image

Looking for good gyneacological oncologist, Midlands, London... entire UK. Please, recommend somebody ( I am new to this forum).

Hello everyone I have joint this community today. I am already with thyroid and endometriosis...

I am new here! I need some advice.

I am 41 years old and in November my ovary ruptured. They did emergency surgery and removed the...
Lnsharris98 profile image

I am new to this site and love it! This is my 3rd set of chemo now am on caelyx help me with the side effects please

I have a decent time aside from some nausea and tiredness for the first 3 day I also take Nausea...

Moderation team

Ovacare2 profile image
Ovacare2Administrator
OvaCare1 profile image
OvaCare1Administrator

Top community tags

Popular Posts

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.