Whats the next step?: Hello, Only found out about... - OvaCare

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Whats the next step?

Pixiepurple profile image
8 Replies

Hello,

Only found out about Ovacare yesterday, through a friend. Diagnosed during the summer & have my 6th chemo session next week.

Just wondering whats ahead? Can anyone advise what is next?

Thank you!

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Pixiepurple profile image
Pixiepurple
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8 Replies
Tvam profile image
Tvam

Everyone's case is different I guess but you're oncologist will guide you, maybe you have surgery planned, perhaps some post chemo scans. For me I had 6 monthly scans and blood tests with 6 monthly out patient clinics also. I connected with my local cancer support centre and found it a great help to meet people on the same journey as myself. Best of luck to you for the future

Pixiepurple profile image
Pixiepurple in reply toTvam

Hi Tvam, thank you for your reply. I am thinking maybe more surgery alright might be on the cards. I wish I could have my oncology appointment behind me and can start getting on with life. Thanks again

lesleysage profile image
lesleysage

Hello Pixiepurple and sorry you have need to join us...but you will find everyone here and all the resources of Ovacome and their website valuable 'company', useful and caring.

Please be kind to yourself as, hopefully, you've a long life ahead.

Warm wishes. x

Pixiepurple profile image
Pixiepurple in reply tolesleysage

Thank you Lesleysage. I wish I knew about this group sooner. Thank you x

delia2 profile image
delia2

Hi. Can you give more information about your stage and grade of OC? Have you been tested for homologous recombination deficiency (HRD)? BRCA or other mutations? The norm these days is to go on a PARP inhibitor for two years after frontline chemo. Which one depends on the answer to the above questions. Some people take both Avastin and Olaparib for maintenance. A lot depends on the specifics of your case. Precision medicine means trying to target each person’s specific circumstances. But it’s important to advocate for yourself and get as much information as you can.

Pixiepurple profile image
Pixiepurple in reply todelia2

Hi Delia2 I'm stage 4 & have been tested for Brca & its negative. Thank you for the names of the medicine all new to me. I haven't been told what stage. To be honest when I found out I didn't ask any questions & have been keeping my head in the sand since. To scared really to ask.

Thank you. X

wendydee profile image
wendydee

I hope you’re doing well and that you’re beginning to make sense of things after your diagnosis. The Ovacome website is full of information and there are lots of fact sheets to help you to get your head around what the terminology is. There is also a list of support groups where you may find a group to support you if you feel you could do with that, where you’ll meet women in a similar situation. I help out at one such groups in Essex (copescharity.co.uk). It’s informative, supportive and fun. All the best,

Wendy xx

Pixiepurple profile image
Pixiepurple in reply towendydee

Hi Wendy thank you I will explore the site & find out more info. Thank you

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