Lynch syndrome information event

[Twincess]

Hello All 🙂 I'm not sure how many of you are aware of Lynch syndrome, a genetic condition that greatly increases a person's lifetime risks of many cancers including ovarian cancer. It's currently under diagnosed and under managed. I don't believe it's from lack of interest... More lack of awareness in the general public and medical community. I'm trying to raise awareness and hopefully be able to bring some support to any fellow lynchies that may be part of the ovacare community 🙂 there is a Lynch information evening being held in St Vincent's hospital, Dublin. For anyone interested in attending I'll attach poster below. Thanks for allowing me to be a part of this community.. I hope to further educate myself in ovarian cancer to better be able to manage my health!!

[Trathi]

Sounds interesting Twincess. I had my BRCA tests which were negative as both my parents died of other cancers. Would be interested in reading about it. Thank you xx

[Twincess in reply to Trathi]

Hi Trathi. Lynch cancers include colon, gynecological, gastric, skin, urinary tract and brain with an earlier onset that normal for these cancers ( my uncle died at 41yrs my Aunt 46yrs) my grandmother and mother also had cancers ( colon, stomach) honestly it was just normal growing up when someone was taken ill you expected cancer. the first time I heard about Lynch was two years ago ( age 33) when a colonoscopy to check for inflammatory disease found multiple precancerous polyps ( twin sister had same) my consultant realized straight away something wasn't right and sent me to genetics. I have frequent screenings catch things early and are life saving. Im with gyne oncologist tomorrow for ovarian mass found 2wks ago. Hopefully complex cyst but we'll see. I wanted to spread awareness about Lynch as it's so under recognized ( as common as BRAC) if families don't know they have it how can they avail of lifesaving screening! If you think it affects you start by looking through your family history of all cancers and discuss it with your doctor. 🙂

[Twincess in reply to Trathi]

There's a closed Facebook group " Lynch syndrome ireland" & website where you can get helpful info 🙂

[Trathi in reply to Twincess]

Thank you xx