Stopping Prolia : Has anyone stopped... - Osteoporosis Support

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Stopping Prolia

56kat profile image
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Has anyone stopped Prolia and successfully transitioned to another drug?

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56kat
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Arcadia10 profile image
Arcadia10

I'm in the process of doing so. Last Prolia injection was Sept 2019, so technically stopped from missed injection of Mar 2020. I'm on 35mg Actonel (risedronate) weekly and having bone turnover measured every 2 months. So far it's well suppressed, just increasing a bit at last test in Sept. Hoping to stop the Actonel by mid-2021 as having side effects.

51na1a profile image
51na1a in reply toArcadia10

How does one get off Prolia ?Even MO's can not give a good answer for starting; let alone trying to get off this horrible drug.

Had 3 injections, last one solo painful I could hardly walk.

I want off, but can not get an reasonable answer if I should of been can !!!

Feel like a test subject and piggy bank.

Any viable way off this "road to Hell" ???

Answers and ideas Welcome.

Arcadia10 profile image
Arcadia10 in reply to51na1a

Just do what I'm doing, as in my post above. Actonel is doing the job, but I've read that Fosamax and the IV Reclast work as well. My latest CTx on 26 Nov indicates that my bone turnover is increasing, but still within acceptable limits. It's a weaning off process, done slowly. Probably in 6 months's time, I'll start tapering off the Actonel, then stopping these bone drugs altogether.

I feel almost back to normal 14.5 months since my last Prolia injection. I had relentless side effects for 18 months while on Prolia.

51na1a profile image
51na1a in reply toArcadia10

Thank you for the info.Will discuss with MO on coming Tuesday.

51na1a profile image
51na1a in reply to51na1a

Will forward helpful info, if any.Thanks.

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